www.cff.org/ firstname.lastname@example.org Other Contact Information
6931 Arlington Road
Bethesda, MD 20814
1-800-344-4823 (Voice - Toll-free) 301-951-4422 (Voice) 301-951-6378 (FAX) Description
The Cystic Fibrosis Foundation was established in 1955 to find new treatments for cystic fibrosis and ultimately the cure. The Foundation also strives to lengthen and improve the quality of life for cystic fibrosis patients, and to reduce the impact of the disease on the patient, the family, and society. The Foundation sets top priority on basic research and research training in cystic fibrosis and supports such research through grants, research scholar awards, new investigator research grants, research fellowships, and student traineeships. The Foundation also supports a network of 115 Cystic Fibrosis Care Centers, which provide the latest in specialized diagnosis and high quality care for these patients. The Foundation also serves as an advocacy organization for persons with the disease.
DATABASE: The Foundation maintains a computerized registry of cystic fibrosis patient information for use by researchers and other scientists studying the disease.
The Foundation publishes educational materials for people with CF, parents, teachers, health care providers, and the public, which are provided free on request. Serial publication: Commitment (newsletter), four issues per year--news and features about CF research and the people and work of the Foundation.
Thursday, Sep 09, 2010