www.familialdysautonomia.org firstname.lastname@example.org Other Contact Information
315 West 39th Street, Suite 701
New York, NY 10018
212-279-1066 (Voice) 212-279-2066 (FAX) Description
The Dysautonomia Foundation is an international organization created in 1951, to provide services for patients with Familial Dysautonomia, a Jewish genetic disorder. We support a Treatment and Evaluation Center at NYU Medical Hospital in NYC as well as a satellite center at Hadassah Hospital - Israel. The Foundation funds research into FD leading to a cure. It also offers support services to families including information on Treatment and Research.
The Foundation publishes a treatment manual for parents and physicians, two informational brochures, a booklet for children, and distributes medical reprints and treatment bulletins. Serial publications: annual newsletter; Fund Raising journal, annual; Dysautonomia Research Report, annual.
Wednesday, Oct 12, 2011