www.gbs-cidp.org/ firstname.lastname@example.org Other Contact Information
The Holly Building
104 1/2 Forrest Avenue
Narberth, PA 19072
1-866-224-3301 (Voice - Toll-free) 610-667-0131 (Voice) 610-667-7036 (FAX) Description
The GBS/CIDP Foundation International, founded in 1980, provides support for patients and families confronted with Guillain-Barre Syndrome and chronic inflammatory demyelinating polyneuropathy. Both are disorders involving peripheral nerves that present as severe muscle weakness, often paralysis.
The GBS/CIDP Foundation International seeks to improve the quality of life for individuals and families worldwide affected by GBS, CIDP and variants by 1) providing a network for all patients, their caregivers and families so that GBS or CIDP patients can depend on the Foundation for support, and reliable up-to-date information, 2) providing public and professional educational programs worldwide designed to heighten awareness and improve the understanding and treatment of GBS, CIDP and variants, 3) expanding the Foundation’s role in sponsoring research and engaging in patient advocacy.
The GBS/CIDP Foundation International provides various pamphlets and a DVD about both syndromes. For a complete inventory, go to http://www.gbs-cidp.org/home/get-support/resources/publications/
Tuesday, Jun 12, 2012