email@example.com www.myelin.org Other Contact Information
P.O. Box 39
Pacific Palisades, CA 90272-0039
1-800-869-3546 (Voice - Toll-free) 310-459-1071 (Voice) 310-230-4298 (FAX) Description
The Myelin Project is a non-profit organization, the goal of which is to accelerate research on the remyelination of the central nervous system. Successful research in this area will help those suffering from insufficient myelin and demyelinating disorders; i.e. Multiple Sclerosis, Guillain-Barre Syndrome and the leukodystrophies. The leukodystrophies are a group of genetically transmitted diseases in which abnormal metabolism of myelin constituents leads to progressive demyelination. The Project can provide literature relating to the above named diseases, and describing their research efforts, and its progress. The organization will also conduct literature searches relating to myelin diseases upon request. Some material are available in Italian, French and German. All services are extended to patients, professionals, and the general public. The organization will respond to inquiries made either by mail, telephone or electronic mail.
Bi-annual progress reports on the Project's research, Journal articles, and the MCA video "Lorenzo's Oil".
Friday, Apr 29, 2011