Organization URL(s)
www.shwachman-diamond.org
info@shwachman-diamond.org
Other Contact Information
127 Western Avenue
Sherborn, MA 01770
1-888-825-7373 (Voice - Toll-free)
Description
The Shwachman-Diamond Syndrome Foundation (formerly Shwachman-Diamond Syndrome International) is a non-profit group that operates on national and international levels. The purpose of the organization is to support families dealing with this rare disease, to advocate research, disseminate medical information and raise public awareness.
Print Resources
Books, pamphlets and periodicals/newsletters are available. Italian, Dutch and French language materials are also available. There is no charge for items.
Related Topics
Review Date
Tuesday, Aug 17, 2010
