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Cancer--Coping

Division of Cancer Prevention and Control, Centers for Disease Control and Prevention

The Centers for Disease Control and Prevention (CDC) is a leader in nationwide efforts to ease the burden of cancer. Through the Division of Cancer Prevention and Control (DCPC), CDC works with national cancer organizations, state health agencies, and other key groups to develop, implement, and promote effective strategies for preventing and controlling cancer. CDC provides funding and assistance to help states, tribes/tribal organizations, and territories collect data on cancer incidence and deaths, cancer risk factors, and the use of cancer screening tests. Public health professionals use the data to identify and track cancer trends, strengthen cancer prevention and control activities, and prioritize the use of resources. CDC develops communication campaigns and materials designed to teach health professionals, policy makers, the media, and the public about cancer prevention and control.

Review Date: July 13, 2011

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American Cancer Society

The American Cancer Society (ACS) was originally established as the American Society for the Control of Cancer in 1913, and became the ACS in 1945. ACS is the voluntary organization dedicated to eliminating cancer as a major health problem. It conducts and supports programs of research, education, and service to the cancer patient. The Society's immediate goal of saving more lives is served through educating the public about prevention and early detection of cancer, the importance of prompt treatment, and the possibilities of cure, through educating the medical profession to the latest advances in diagnosis and treatment of cancer, and through direct service to the cancer patient and the patient's family. Public education activities include a toll-free cancer information services publication of a variety of pamphlets, educational programs conducted in schools and communities, and presentation of materials in the mass media. The Society has a comprehensive professional education program designed to motivate physicians, dentists, and nurses to use the best cancer management techniques. The Society conducts service and rehabilitation programs for cancer patients and their families. ACS supports cancer research through several types of research grants and disseminates the research results. ACS has 17 divisions as well as over 3400 local units.

Review Date: June 25, 2009

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American Childhood Cancer Organization

American Childhood Cancer Organization (ACCO), formerly known as Candlelighters Childhood Cancer Foundation, began in 1970 by a group of parents whose children had been diagnosed with cancer. They came together to lobby for more research, and to support each other through the diagnosis and treatment of this life threatening disease at a time when very few children survived. Today, ACCO is one of the largest grassroots, national organizations dedicated to improving the lives of children and adolescents with cancer and their families. ACCO has over 40 local affiliate organizations across the country providing direct services to the families in their communities.

Review Date: October 13, 2011

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American Hair Loss Council

Founded in 1985 as a non-profit organization, the Council's mission is to provide non-biased information on treatments and options for men, women and children experiencing hair loss. For its membership, AHLC has developed into a communication and information forum through which professionals can exchange their expertise in different areas of hair loss specialization.

Review Date: February 12, 2009

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Cancer Care

Cancer Care is dedicated to helping people face the many challenges of a cancer diagnosis. Cancer Care provides free professional support services including counseling, education, financial assistance and practical help to people across the country. Since its inception in 1944, Cancer Care has offered help and hope to thousands of people with cancer, their family members and friends, as well as healthcare professionals. Cancer Care's services are available to people of all ages, with all types of cancer and at any stage of the disease. All services are provided by professional oncology social workers in three ways: online, on the telephone and face-to-face at Cancer Care locations.

Review Date: January 15, 2009

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Cancer Hope Network

Cancer Hope Network is a nonprofit organization established in 1981. It provides support for patients and families dealing with cancer and cancer treatments. The program offers personal one-on-one support for people undergoing all treatments for cancer. The support is provided by over 300 trained and certified volunteers who have survived the treatment themselves and understand the fears and concerns the patients encounter. The Network's services are free and confidential.

Review Date: January 09, 2009

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Cicatricial Alopecia Research Foundation

The Cicatricial Alopecia Research Foundation (CARF) is a 501(c)(3) tax-exempt not-for-profit organization formed in 2001 as a result of one person's experience with scarring alopecia (cicatricial means scarring). When the patient realized that little is known about such disorders, she decided, with the help of her doctor, to initiate a grassroots effort to raise funds for research to find effective treatments and a cure, to support education and advocacy, and to raise public awareness of these rare diseases. CARF funds are available to support research that will enhance our knowledge about this difficult group of diseases.

Review Date: September 09, 2010

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Dream Foundation

This is a nonprofit organization that grants wishes to adults age 18 years and over, its mission is to enhance the quality of life for individuals and families battling terminal illnesses. This organization serves all fifty states from one small office based in Santa Barbara, and a satellite office in Los Angeles.

Review Date: May 25, 2010

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Family Care Research Program

Family Care Research Program is a collaborative, interdisciplinary effort of faculty from the Michigan State University Colleges of Nursing and Human Medicine and the Department of Family Practice. The program's primary goal is to learn how patients and families face the burden of providing care, primarily for patients with cancer, in a transforming health care system; to better understand how families learn to care; and to disseminate this scientific knowledge and influence health care reform and policy.

Review Date: March 12, 2010

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Living Beyond Breast Cancer

Living Beyond Breast Cancer (LBBC) is dedicated to assisting you, whether you are newly diagnosed, in treatment, recently completed treatment, are years beyond or are living with metastatic breast cancer. We are also here for your family members, caregivers, friends and healthcare providers to provide breast cancer information and support. As a national education and support organization, our goal is to improve your quality of life and help you take an active role in your ongoing recovery or management of the disease, regardless of educational background, social support or financial means.

Review Date: December 31, 2010

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ManageCancer.org

ManageCancer.org is a service provided by Christina’s Garden, a 501(c)(3) non-profit organization created to assist those battling cancer. Their free cancer resource website provides cancer patients and their loved ones with information and links to valuable resources to assist with finances, medication and doctor schedules, communication, support, assistance, education, travel, housing and more. They also provide suggestions on ways that loved ones can help.

Review Date: March 22, 2013

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National Coalition for Cancer Survivorship

Founded by and for cancer survivors, the National Coalition for Cancer Survivorship (NCCS) advocates for quality cancer care for all people touched by cancer and provides tools and resources that empower people to advocate for themselves. Patients empowered with information and tools can receive optimal care by making their needs known to their doctors and care teams. Provided at no cost to the survivor, NCCS offers publications and resources such as the award-winning Cancer Survival Toolbox®, a self-learning audio program created by leading cancer organizations to help people develop essentials skills to meet the challenges of their illness. NCCS strongly believes in evidence-based advocacy that reflects the needs of all cancer survivors to effect policy change at the national level. By advocating for patient-centered, coordinated care through treatment planning and care planning, NCCS is ensuring that the needs of cancer survivors remain at the center of healthcare policy.

Review Date: August 28, 2008

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National Ovarian Cancer Coalition, Inc.

The mission of the National Ovarian Cancer Coalition (NOCC) is to raise awareness and promote education about ovarian cancer. The Coalition is committed to improving the survival rate and quality of life for women with ovarian cancer. Through national programs and local Chapter initiatives, the NOCC's goal is to make more people aware of the early symptoms of ovarian cancer. In addition, the NOCC provides information to assist the newly diagnosed patient, to provide hope to survivors, and to support caregivers.

Review Date: September 07, 2011

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NIH National Cancer Institute

The National Cancer Institute (NCI) is part of the National Institutes of Health (NIH), which is one of 11 agencies that compose the Department of Health and Human Services (HHS). The NCI is the Federal Government's principal agency for cancer research and training. It coordinates the National Cancer Program, which conducts and supports research, training, health information dissemination, and other programs with respect to the cause, diagnosis, prevention, and treatment of cancer, rehabilitation from cancer, and the continuing care of cancer patients and the families of cancer patients.

Review Date: August 03, 2011

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The DES Cancer Network

The DES Cancer Network is an organization that addresses the special needs of women who have had clear cell adenocarcinoma of the vagina and/or cervix -- a cancer linked to exposure to DES before birth. The DCN is an international support system that gives members access to one another and to information about clear cell cancer. Membership is available to any individual interested in participating in the work of the DES Cancer Network.

Review Date: May 01, 2009

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The Oral Cancer Foundation

The Oral Cancer Foundation is a national public service, non-profit entity designed to reduce suffering and save lives through prevention, education, research, advocacy, and patient support activities. OCF is also a public service charity designed for advocacy and service, created to promote change in both the public and medical/dental professional sectors. OCF contributes to the reduction of suffering, permanent physical damage and disfigurement, and death caused by this disease through (1) public and professional awareness, (2) prevention through lifestyle changes, (3) early detection initiatives, (4) education, (5) improved treatment modalities, and (6) sponsorship of research. A FREE and anonymous patient / survivor discussion forum is open to the public, where those currently fighting oral cancer and their families can gain insights and inspiration from those who have been there before them. It is closely monitored for appropriateness of information posted there.OCF has a FREE RSS oral cancer news feed which you may subscribe to on this site, which is updated several days a week with the latest research information, and human interest stories related to the disease drawn from literally hundreds of sources. It is a valuable resource for patients, students, and practicing medical and dental professionals.

Review Date: October 17, 2011

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The Scott Hamilton CARES Initiative (CARES)

The Scott Hamilton CARES Initiative (CARES) was founded in 1999 as a partnership between Scott Hamilton, Olympic ice-skating champion and cancer survivor, and the Cleveland Clinic Taussig Cancer Institute where he was treated. CARES was created to promote cancer awareness while raising significant funds for cancer research. Key components of CARES include 4th Angel Mentoring Program – designed to match newly diagnosed patients with trained volunteers who are also cancer survivors and to match a caregiver of a cancer survivor to a current caregiver of a cancer patient; Chemocare.com – a unique website designed to help patients better understand the chemotherapy experience; Research Funding and Annual Ice show and Gala – the primary fundraising event for CARES.

Review Date: August 23, 2011

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