U.S. Department of Health and Human Services

Menu

Anemia

Fanconi Anemia Research Fund, Inc.

Fanconi Anemia Research Fund, Inc., is a nonprofit corporation established in 1989. It is committed to providing education and support services to families around the world affected by FA. The Fund sponsors a variety of programs and services to assist the FA patients and their families. The Fanconi Anemia Research Fund manages two online Support Groups, which allows adults with FA and families affected by FA to exchange questions and information with others affected by FA. The Fund provides education to those affected by FA. The Annual Family Meeting brings specialists and families together, providing parents and adults with FA with the latest information on health care guidelines, as well as giving children with FA opportunities for leisure activities in a supportive environment.

Review Date: June 09, 2011

List reviewed web resources

Iron Disorders Institute

Iron Disorders Institute (IDI) is a 501(c)3 national organization headquartered in Greenville, South Carolina. Iron Disorders Institute’s vision is that no one should suffer or die prematurely because of Iron-Out-of-Balance™. IDI exists so that people with iron disorders receive early, accurate (complete) diagnosis, appropriate treatment and are equipped to live in good health. Iron Disorders Institute (IDI) is part of an International Alliance of patient support and advocacy organizations promoting hemochromatosis (also spelled: haemochromatosis).

Review Date: October 17, 2011

List reviewed web resources

National Hematologic Diseases Information Service - NHDIS
National Institute of Diabetes and Digestive and Kidney Diseases

The National Hematologic Diseases Information Service (NHDIS) is a service of the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK). The NIDDK is part of the National Institutes of Health of the U.S. Department of Health and Human Services. The NHDIS provides information about hematologic diseases to people with hematologic diseases and to their families, health care professionals, and the public. The NHDIS answers inquiries, develops and distributes publications, and works closely with professional and patient organizations and Government agencies to coordinate resources about hematologic diseases.

Review Date: April 11, 2011

List reviewed web resources

Sickle Cell Information Center

The principal mission of this Center is to help break the sickle cycle. The Center works towards this goal by providing the sickle cell patient and professional access to education, news, research updates and world wide sickle cell resources via its web site; and offering compassionate care, education, counseling, and research for patients with sickle cell disease.

Review Date: May 24, 2012

List reviewed web resources

Society for the Advancement of Blood Management, Inc.

The Society for the Advancement of Blood management (SABM) is a nonprofit organizaton and professional society of physicians, nurses, and technicians with expertise in patient blood management with a mission to improve health outcomes for everyone. SABM is grounded in scientific validaton, evidence-based practices and centered on the patient's best interest through effective and optimal patient blood management. SABM promotes education and training to achieve change through a multidisciplinary approach to patient blood management by providing public education and advancing best practices to thousands of health care providers through numerous CME programs and the development of learning tools and evidence based clinical pathways.

Review Date: August 20, 2012

List reviewed web resources