U.S. Department of Health and Human Services



NIH National Institute on Aging

NIA, one of the 27 Institutes and Centers of NIH, leads a broad scientific effort to understand the nature of aging and to extend the healthy, active years of life. In 1974, Congress granted authority to form NIA to provide leadership in aging research, training, health information dissemination, and other programs relevant to aging and older people. Subsequent amendments to this legislation designated the NIA as the primary Federal agency on Alzheimer’s disease research. The Institute's mission is to: •Support and conduct genetic, biological, clinical, behavioral, social, and economic research related to the aging process, diseases and conditions associated with aging, and other special problems and needs of older Americans. •Foster the development of research and clinician scientists in aging. •Communicate information about aging and advances in research on aging to the scientific community, health care providers, and the public.

Review Date: August 11, 2011

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American Congress of Obstetricians and Gynecologists

Founded in 1951, the American College of Obstetricians and Gynecologists (ACOG) has over 55,000 members and is the nation's leading group of professionals providing health care for women. ACOG works primarily in four areas: serving as a strong advocate for quality health care for women; maintaining the highest standards of clinical practice and continuing education for its members; promoting patient education and stimulating patient understanding of and involvement in medical care; increasing awareness among its members and the public of the changing issues facing women's health care. ACOG houses a resource center which acts as a clearinghouse for ob/gyn information for both professionals and consumers.

Review Date: November 10, 2011

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Endocrine Society

Based in Bethesda, Maryland, The Endocrine Society is comprised of nearly 8,000 members worldwide. Founded in 1916, the Society is dedicated to the study and treatment of the endocrine system. The Society holds four meetings annually: The Annual Meeting, the Clinical Endocrinology Update, Recent Progress in Hormone Research, and the Introduction to Molecular and Cellular Research.

Review Date: August 26, 2008

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Hormone Health Network

The Hormone Health Network, the public education affiliate of The Endocrine Society, is dedicated to serving as a resource for the public by promoting the prevention and cure of hormone-related disease. Through its public education campaigns, Web site, forums and toll-free number, the Hormone Health Network is a leading source of information, providing a variety of resources for the public, physicians and allied health professionals including a physician referral directory, a clinical trials database, educational animations and free publications. The Hormone Health Network has developed educational materials on menopause, pituitary imbalances, polycystic ovary syndrome (PCOS) and testosterone and men's health, and is currently developing programs on hormone abuse, prostate disease, obesity, metabolic syndrome, thyroid disease and osteoporosis.

Review Date: April 12, 2012

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Human Growth Foundation

The Human Growth Foundation (HGF) is a national organization of volunteers concerned with child growth abnormalities, specifically dwarfism of all forms, whether caused by pituitary growth hormone deficiencies, Turner's syndrome, or bone disorders. The Foundation, created in 1965 by parents of children with severe growth problems, offers parent education and mutual support, supports research, and promotes public awareness of the physical and emotional problems of short-statured people. The core of founding parents has since been joined by medical persons (endocrinologists, pediatricians, and physicians) and researchers. HGF acts as a clearinghouse for families with growth problems and administers a medical research program.

Review Date: October 14, 2011

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Little People of America, Inc.

Little People of America, Inc. will provide support and information to people of short stature, (dwarfism), and their families. Primary membership usually is offered to those people who are around 4’10” in height as an adult. LPA is a non-profit, member run organization founded in 1957. LPA will assist those who have a diagnosis of dwarfism with their physical and developmental concerns resulting from short stature. LPA offers information on employment, education, disability rights, adoption of short statured children, medical issues, clothing, adaptive devices and parenting tips. Information is provided through hundreds of dedicated volunteers throughout the U.S. as well as through a national newsletter “LPA Today,” chapter, and district newsletters. LPA also provides opportunities for social interaction at chapter, district, regional meetings, national conferences, and participation in athletic events. LPA, Inc. provides educational scholarships, medical assistance grants, access to our medical advisory board, and funds for publications and other projects.

Review Date: January 12, 2011

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Turner Syndrome Society

The Turner Syndrome Society of the United States (TSSUS) is a national non-profit 501 (c) (3) organization that provides health-related resources to patients, families and physicians for the diagnosis and treatment of Turner syndrome. There are chapters and support groups located throughout the country. TSSUS holds an annual conference with speakers from a variety of professions including medical experts, social workers, educators and psychologists. These meetings provide an opportunity to exchange information on many topics of interest to TS patients of all ages.

Review Date: November 10, 2011

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