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Cleft Lip and Palate

American Cleft Palate-Craniofacial Association

The American Cleft Palate-Craniofacial Association (ACPA) is an international, non-profit medical society of health care professionals from 30 disciplines and 40 countries who treat and/or research birth defects of the head and face. For more than 50 years, the members of ACPA have served an important role in the multidisciplinary management of children and adults with cleft lip, cleft palate, and craniofacial anomalies. While ACPA's focus is on professional education, such as with its annual scientific meeting, the affiliated Cleft Palate Foundation (CPF) serves to educate the public about facial difference. The Foundation operates the CLEFTLINE (1-800-24-CLEFT), a toll-free referral service for parents and patients, and sends informational packets to callers who request them. Both organizations operate out of the National Office.

Review Date: November 15, 2011

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Children's Craniofacial Association

Children's Craniofacial Association is a national, 501(c)3 nonprofit organization, headquartered in Dallas,Texas, dedicated to improving the quality of life for people with facial differences and their families. Nationally and internationally, CCA addresses the medical, financial, psychosocial, emotional, and educational concerns relating to craniofacial conditions. CCA's mission is to empower and give hope to individuals and families affected by facial differences.

Review Date: April 21, 2011

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Cleft Palate Foundation

The Cleft Palate Foundation (CPF) is a nonprofit organization dedicated to optimizing the quality of life for individuals affected by facial birth defects. It is the public service arm of the American Cleft Palate-Craniofacial Association. Callers can request information about cleft palate/craniofacial treatment teams and parent-patient support groups in their local region. In addition, the CPF provides the following services: comprehensive information to educate patients, families, and professionals; telephone and online counseling and support service through the Cleftline 1-800-24-CLEFT (1-800-242-5338); research to learn about prevention and care; Cleftline Teddy Bears with repaired cleft lips; advocacy for family-centered team care; and, awards for a minimum of three $500 college scholarships each year to young adults affected by cleft and craniofacial birth defects.

Review Date: February 26, 2013

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FACES: The National Craniofacial Association

FACES: The National Craniofacial Association is a non-profit organization serving children and adults throughout the United States with severe craniofacial deformities resulting from birth defects, injuries, or disease. There is never a charge for any service provided. FACES provides financial assistance for expenses incurred while traveling away from home to a craniofacial center for reconstructive surgery and/or evaluation, based on financial and medical need of the family. FACES furnishes information about craniofacial centers and publishes a brochure which further details the scope of our organization. FACES provides referrals to other available resources and organizations, maintains up-to-date information on specific diseases or birth defects, and assists in getting families in touch with other families who have a child with the same disorder.

Review Date: May 31, 2011

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Foundation for Faces of Children

The Foundation for Faces of Children (FFC) is a New England-based, non-profit organization, and a national source of information about craniofacial conditions. FFC is dedicated to improving the lives of children with craniofacial conditions, including cleft lip and palate and other head and facial anomalies. The organization concentrates its efforts on education, training, family support systems, and the dissemination of accurate information. FFC also funds targeted research about the causes, treatments, and outcomes of these conditions. Additional services provided by FFC include (1) a scholarship program for young adult residents of New England who were born with a facial difference and are pursuing post-secondary education, (2) a Web site containing medically reviewed information about the major craniofacial conditions and a host of other information of interest to parents and patients, and (3) a video about cleft lip and palate.

Review Date: April 21, 2011

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March of Dimes Birth Defects Foundation

The March of Dimes is the leading nonprofit organization for pregnancy and baby health. With chapters nationwide and its premier event, March for Babies®, the March of Dimes works to improve the health of babies by preventing birth defects, premature birth and infant mortality. The March of Dimes carries out their mission by investing in research and educating health care professionals, pregnant women and new moms. They also are there with support for families with a baby in newborn intensive care. For the latest resources and information, visit marchofdimes.com or nacersano.org.

Review Date: June 17, 2008

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Operation Smile

Since 1982, Operation Smile — through the help of dedicated medical volunteers — has provided more than 2 million patient evaluations and over 200,000 free surgeries for children and young adults born with cleft lips, cleft palates and other facial deformities. As one of the most prominent children’s charities in the world and with a presence in over 60 countries, Operation Smile is able to heal children’s smiles and bring hope for a better future.

Review Date: December 02, 2011

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