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Ear Disorders and Infections

DB-LINK/National Consortium on Deaf-Blindness

The National Consortium on Deaf-Blindness (NCDB) is a national technical assistance and dissemination center for children and youth who are deaf-blind. Funded by the U.S. Department of Education's Office of Special Education Programs (OSEP), NCDB is home to DB-LINK, the largest collection of information related to deaf-blindness worldwide. A team of information specialists makes this extensive resource available in response to direct requests, via the NCDB web site, through conferences and a variety of electronic medium. NCDB brings together the resources of The Teaching Research Institute (TRI) at Western Oregon University, the Helen Keller National Center (HKNC), and the Hilton/Perkins Program at Perkins School for the Blind, and works collaboratively with families, federal, state and local agencies to provide technical assistance, information and personnel training.

Review Date: September 07, 2011

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NIH National Institute on Deafness and Other Communication Disorders

Established in 1988, NIDCD is mandated to conduct and support biomedical and behavioral research and research training in the normal and disordered processes of hearing, balance, smell, taste, voice, speech, and language. The Institute also conducts and supports research and research training related to disease prevention and health promotion; addresses special biomedical and behavioral problems associated with people who have communication impairments or disorders; and supports efforts to create devices which substitute for lost and impaired sensory and communication function. NIDCD has focused national attention on disorders of human communication and has contributed to advances in biomedical and behavioral research that will improve the lives of millions of individuals with communication disorders.

Review Date: August 11, 2011

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Acoustic Neuroma Association

The Acoustic Neuroma Association, founded in 1981, is a patient organization dedicated to providing information and support to people diagnosed with, treated for, or affected by acoustic neuroma. It is an incorporated, nonprofit organization, recognized as such by the IRS. ANA serves nearly 5,000 members, is governed by an all-patient executive board and is operated by a small staff in a northern suburb of Atlanta, GA. In addition to the print resources mentioned above, the association presents a national symposium every other year, provides a network of local patient support groups, promotes and publishes results of research and maintains an interactive Web site.

Review Date: January 30, 2009

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American Academy of Otolaryngology--Head and Neck Surgery

The American Academy of Otolaryngology-Head and Neck Surgery (AAO-HNS) is the world's largest organization representing specialists who treat the ear, nose, throat, and related structures of the head and neck. The Academy represents more than 12,000 otolaryngologist—head and neck surgeons who diagnose and treat disorders of those areas. The AAO-HNS Foundation works to advance the art, science, and ethical practice of otolaryngology-head and neck surgery through education, research, and lifelong learning.

Review Date: December 16, 2011

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American Tinnitus Association

The American Tinnitus Association (ATA) is committed to a cure. ATA provides funding for tinnitus research. In addition, the ATA provides information about tinnitus and maintains listings of hearing healthcare professionals. ATA self-help groups serve most major U.S. population areas. The Association also sponsors workshops for hearing professionals. Public education includes information about prevention and treatments for tinnitus.

Review Date: January 16, 2009

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CODA: Children of Deaf Adults

C.O.D.A. – Children of Deaf Adults, Inc., is a non-profit organization that focuses on hearing children of deaf adults. The organization began in 1983 and has grown to include people from many different countries and very different family and extended family situations. C.O.D.A. addresses bicultural identity through conferences, support groups, and resource development.

Review Date: August 28, 2008

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DeafMD.org Foundation

The DeafMD.org Foundation was established to help create crucial health education materials in American Sign Language (ASL) for the Deaf & Hard of Hearing Community. DeafMD.org is an innovative Web site providing accurate, concise, and valuable health information in American Sign Language to the Deaf & Hard of Hearing population. Using health information created by two trustworthy and unbiased government sources—the Centers for Disease Control and the National Institutes of Health, DeafMD's team of healthcare providers, linguists, and educators translates this complex information into ASL.

Review Date: July 23, 2010

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Described and Captioned Media Program

The mission of the DCMP is to promote and provide equal access to communication and learning through described and captioned educational media. The ultimate goal of the DCMP is for accessible media to be an integral tool in the teaching and learning process for all stakeholders in the educational community, including students, educators and other school personnel, parents, service providers, businesses, and agencies. The DCMP supports the U.S. Department of Education Strategic Plan by committing to the following goals: 1) Ensuring that all students who are blind, visually impaired, deaf, hard of hearing, or deaf-blind have the opportunity to achieve the standards of academic excellence. 2) Advocating for equal access to educational media as well as the establishment and maintenance of quality standards for captioning and description by service providers. 3) Providing a collection of free-loan described and captioned educational media. 4) Furnishing a clearinghouse of information and research about accessible media. 5) Acting as a gateway to Internet resources related to accessibility. 6) Exploring and adapting new media and technologies that assist students in obtaining and using available information. The DCMP is funded by the U.S. Department of Education and is administered by the National Association of the Deaf.

Review Date: December 09, 2009

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Dogs for the Deaf, Inc.

Dogs for the Deaf, Inc. is a nonprofit organization that rescues and professionally trains dogs to assist people and enhance lives. The organization selects Hearing Dogs -- usually mixed breeds, small to medium in size, and 6 to 36 months of age -- from adoption shelters, trains them and places them with qualified individuals who are deaf or hard of hearing. Dogs are also trained and placed with children and families living with autism and people who are in need of emotional support or have other special needs. All dogs rescued are trained, placed and followed up on free of charge.

Review Date: June 01, 2011

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Gallaudet University Library

The Gallaudet University Library is located in the Merrill Learning Center. The Library has approximately 210,000 print books, 320,000 electronic books, 8,000 videos, 70 databases, and 50,000 periodical subscriptions. All these collections are available for public use on campus. The Library has the largest collection of deaf-related materials in the world, including books, periodicals, videos and other types of media, and rare items in the University Archives. The Gallaudet University Library is a member of the Washington Research Library Consortium.

Review Date: February 26, 2013

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Hearing Health Foundation

Hearing Health Foundation is the largest private funder of hearing research, with a mission to prevent and cure hearing loss through groundbreaking research. Since 1958 Hearing Health Foundation has given over $27.8 million to hearing and balance research, including work that led to cochlear implant technology. In 2011 Hearing Health Foundation launched the Hearing Restoration Project (HRP), a consortium of scientists working on cell regeneration in the ear. HRP's goal is a biologic cure for most types of acquired hearing loss within the next ten years. Hearing Health Foundation also publishes Hearing Health magazine, a free consumer resource on hearing loss and related technology, research, and products.

Review Date: October 23, 2012

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Hearing Loss Association of America

The Hearing Loss Association of America, founded in 1979, seeks to educate people with hearing loss and the public about hearing loss and its management, and to promote the interests of people with hearing loss. The Association provides self-help programs, technical information, social activities, and referrals on the local chapter level; conferences, an annual convention, advocacy, research, publications, referrals, a bi-monthly journal and an information center on the national level. Advocacy and research efforts are directed at the improvement of hearing technology, the development of alternate communication skills, and the prevention of deafness.

Review Date: August 31, 2010

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House Research Institute

The House Research Institute (formerly House Ear Institute) is a non-profit 501(c)(3) organization dedicated to improving the quality of life for people with hearing loss and related disorders through scientific research, patient care, and the sharing of knowledge. Institute scientists investigate hearing loss and ear disease at the cellular, molecular and genetic levels, as well as the complex neurological interactions between the auditory system and brain. The researchers also study ways to improve auditory implants, diagnostics, clinical treatments and intervention methods. Outreach programs for the public serve people with hearing loss and related disorders as well as offer information about general hearing health and hearing conservation.

Review Date: October 27, 2011

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International Hearing Society

The International Hearing Society (IHS), formed in 1951 as a professional organization of hearing aid specialists, promotes and maintains the highest possible standards in the hearing aid field and helps hearing aid specialists expand their knowledge and skills and enhance their performance in service to the hearing-impaired. The Society provides continuing education for hearing aid specialists through meetings, workshops, and educational materials. IHS sponsors a national toll-free Hearing Aid Helpline, which provides referrals to local, qualified hearing aid specialists and information on hearing loss and hearing aids.

Review Date: November 02, 2011

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John Tracy Clinic

John Tracy Clinic provides worldwide parent-centered services without charge to young children with hearing loss, offering families hope, guidance, and encouragement. Services include correspondence courses and videotapes for parents of children who are deaf or have hearing impairments. The courses are available in both English and Spanish.

Review Date: September 16, 2010

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Laurent Clerc National Deaf Education Center

The Laurent Clerc National Deaf Education Center at Gallaudet University provides information, training, and technical assistance for parents and professionals to meet the needs of children who are deaf or hard of hearing. The Clerc Center serves as a centralized source of information related to deaf and hard of hearing children from birth through age 21 in the United States and also maintains two demonstration schools, Kendall Demonstration Elementary School and the Model Secondary School for the Deaf.

Review Date: July 28, 2009

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National Association of the Deaf

The National Association of Deaf (NAD), founded in 1880, safeguards the civil rights of deaf and hard of hearing Americans. As a national federation of state association, organizational and corporate affiliates, the advocacy work of the NAD encompasses a broad spectrum of areas including, but not limited to accessibility, education, employment, healthcare, mental health, rehabilitation, technology, telecommunications and transportation. The NAD Web site (http://www.nad.org) has a wealth of advocacy information and resources.

Review Date: June 07, 2011

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National Board for Certification in Hearing Instrument Sciences

The National Board for Certification is an independent, non-profit, credentialing organization, established to promote continuing competency assurance of hearing health professionals and to provide a standard of excellence in hearing health care for the consumer.

Review Date: April 12, 2012

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NIH National Institute on Deafness and Other Communication Disorders Information Clearinghouse

The NIDCD Information Clearinghouse is a national resource center which provides information on hearing, balance, smell, taste, voice, speech and language disorders. The Clearinghouse collects and disseminates information; maintains a computerized database of health related materials, and develops and distributes publications. NIDCD Information Clearinghouse responds to telephone, mail and electronic mail requests from health professionals, patients, and the public.

Review Date: April 18, 2014

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Sight and Hearing Association

The Sight and Hearing Association is a nonprofit organization dedicated to enabling lifetime learning by identifying preventable loss of vision and hearing through the development of effective screening, education, and research programs. Projects include a mobile childhood vision and hearing screening program, which helps detect vision and hearing problems from infancy through high school. In addition, the organization participates in community and corporate health events that focus on adult vision and hearing issues.

Review Date: February 26, 2013

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Vestibular Disorders Association

The Vestibular Disorders Association (VEDA), formerly the Dizziness and Balance Disorders Association of America, was founded in 1983 as a nonprofit, membership organization that provides a support network for people coping with dizziness and balance disorders. VEDA acts as a resource for information and services on balance disorders, specifically vestibular disorders, and seeks to educate the public and health professionals. VEDA also supports activites that improve the quality of life for people affected by dizziness and balance disorders. Fees are charged for some publications.

Review Date: September 24, 2010

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