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Epilepsy

NIH National Institute of Neurological Disorders and Stroke - NINDS

The National Institute of Neurological Disorders and Stroke (NINDS) was originally established in 1950. The NINDS conducts and supports research and research training on the causes, prevention, diagnosis, and treatment of neurological disorders and stroke. The Institute awards grants for research projects, program projects, and center grants; provides training support to institutions and fellowships to individuals in the fields of neurological disorders and stroke; conducts intramural and collaborative research; and collects and disseminates research information. Requests for information should be directed to the Office of Communications and Public Liaison.

Review Date: July 26, 2011

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CURE: Citizens United for Research in Epilepsy

CURE is a grass roots organization with the mission of providing hope for children with intractable epilepsy by supporting research to find a cure. Volunteers are needed around the country to support and assist the organization's efforts.

Review Date: August 22, 2010

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Division of Adult and Community Health, National Center for Chronic Disease Prevention and Health Promotion/CDC

CDC’s National Center for Chronic Disease Prevention and Health Promotion (NCCDPHP) is at the forefront of the nation's efforts to prevent and control chronic diseases. The Division of Adult and Community Health (DACH) is charged with managing programs that provide cross-cutting, chronic disease and health promotion expertise. DACH's activities include Communities Putting Prevention to Work, a program developed to impact the nation’s health by reducing chronic diseases related to obesity and tobacco. In addition to supporting programs that foster healthy aging and healthy communities, DASH's Prevention Research Centers (PRC), an interdependent network of community, academic, and public health partners, conduct prevention research and promote the wide use of practices proven to promote good health.

Review Date: July 13, 2011

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Epilepsy Foundation of America

The Epilepsy Foundation is the national voluntary agency dedicated solely to the welfare of the almost 3 million people with epilepsy in the U.S. and their families. The organization works to ensure that people with seizures are able to participate in all life experiences; to improve how people with epilepsy are perceived, accepted and valued in society; and to promote research for a cure. In addition to programs conducted at the national level, people with epilepsy throughout the United States are served by more than 50 Epilepsy Foundation affiliates around the country. The Epilepsy Foundation is a non-profit, charitable agency, designated as a 501 (c) 3 organization by the Internal Revenue Service.

Review Date: April 28, 2011

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Sturge-Weber Foundation

The Sturge-Weber Foundation (SWF) is a non-profit foundation serving people with Sturge-Weber syndrome (also known as encephalotrigeminal angiomatosis), Klippel Trenaunay (KT) and Port Wine Stains (PWS), their families, and the medical and professional community. The Foundation acts as a clearinghouse for information and to facilitate fund raising for research into SWS, KT and PWS. The Foundation provides telephone counselling in addition to an e-mail support group on the Internet

Review Date: July 07, 2010

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The Epilepsy Therapy Project

The Epilepsy Therapy Development Project supports innovative research in both academic and industry settings through direct grants and through participation in the Partnership for Research in Pediatric Epilepsy. The Project also seeks to facilitate the interchange of ideas and coordination of research agendas through the sponsorship of scientific meetings and workshops.

Review Date: March 11, 2010

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