U.S. Department of Health and Human Services



NIH National Institute of Diabetes and Digestive and Kidney Diseases - NIDDK

The National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) conducts and supports research on many of the most serious diseases affecting public health. The Institute supports much of the clinical research on the diseases of internal medicine and related subspecialty fields, as well as many basic science disciplines. The Institute's Division of Intramural Research encompasses the broad spectrum of metabolic diseases such as diabetes, obesity, inborn errors of metabolism, endocrine disorders, mineral metabolism, digestive and liver diseases, nutrition, urology and renal disease, and hematology. Basic research studies include biochemistry, biophysics, nutrition, pathology, histochemistry, bioorganic chemistry, physical chemistry, chemical and molecular biology, and pharmacology. NIDDK extramural research is organized into 4 divisions: Diabetes, Endocrinology, and Metabolic Diseases; Digestive Diseases and Nutrition; Kidney, Urologic, and Hematologic Diseases; and Extramural Activities.

Review Date: July 21, 2011

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NIH National Institute on Aging

NIA, one of the 27 Institutes and Centers of NIH, leads a broad scientific effort to understand the nature of aging and to extend the healthy, active years of life. In 1974, Congress granted authority to form NIA to provide leadership in aging research, training, health information dissemination, and other programs relevant to aging and older people. Subsequent amendments to this legislation designated the NIA as the primary Federal agency on Alzheimer’s disease research. The Institute's mission is to: •Support and conduct genetic, biological, clinical, behavioral, social, and economic research related to the aging process, diseases and conditions associated with aging, and other special problems and needs of older Americans. •Foster the development of research and clinician scientists in aging. •Communicate information about aging and advances in research on aging to the scientific community, health care providers, and the public.

Review Date: August 11, 2011

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NIH National Institute on Aging Information Center

Health Information publications from the National Institute on Aging can be ordered online. You can search or browse to find titles at http://www.nia.nih.gov/HealthInformation/Publications.

Review Date: June 16, 2011

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International Foundation for Functional Gastrointestinal Disorders

The International Foundation for Functional Gastrointestinal Disorders(IFFGD) is a nonprofit education and research organization that addresses the issues surrounding adult and pediatric gastrointestinal diseases. Diseases addressed include irritable bowel syndrome (IBS), gastroesophagealreflux disease (GERD), fecal incontinence, Hirschsprung's disease, chronicintestinal pseudo-obstruction, as well as several others. IFFGD isdedicated to finding a cause and a cure for these disorders. IFFGD offers support and educational services to affected people, their families,healthcare professionals, and the general public.

Review Date: August 30, 2012

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Interstitial Cystitis Association

The Interstitial Cystitis Association of America (ICA) is a national nonprofit patient-driven organization acting as an informative and supportive agent to patients with interstitial cystitis (IC). The group also seeks to educate both the medical profession and the public about interstitial cystitis--once thought to be rare--which may affect millions of people in the United States. IC is a chronic condition of the bladder wall which frequently goes undiagnosed. Although the cause is unknown and no treatment is uniformly effective for everyone, many treatments are available and the vast majority of patients obtain relief. Symptoms include bladder pain, urinary urgency, day and night frequency (up to 60 times per day in some people), suprapubic (lower abdominal) or perineal (area between scrotum and anus in men, or vagina and anus in women) pain and pressure. Interstitial cystitis is most often found in women but can affect either gender. ICA supports research through its own Pilot Research Program. The ICA provides one-on-one support, via phone, mail or e-mail; and through the IC Question Corner on their Web site, where consumer questions are answered by trained IC staff.

Review Date: April 24, 2012

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National Association For Continence

National Association For Continence is a national, private, non-profit 501(c)(3) organization dedicated to improving the quality of life of people with incontinence, voiding dysfunction, and related pelvic floor disorders. NAFC's purpose is to be the leading source for public education and advocacy about the causes, prevention, diagnosis, treatments, and management alternatives for incontinence.

Review Date: May 31, 2011

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The Simon Foundation For Continence

A nonprofit organization formed in 1983, the Simon Foundation for Continence is an educational organization dedicated to providing assistance and support to those suffering from urinary incontinence and their families. In addition, the Foundation promotes public awareness, reviews relevant legislation, and encourages the medical profession's interest in this condition. The Foundation attempts to help the 33 million Americans who suffer from incontinence by organizing self-help groups and distributing up-to-date information. Funds are raised by donations and membership fees. The Simon Foundation maintains three additional websites: http://www.innovatingforcontinence.org; www.managinglifewithincontinence.org; and www.continencecentral.org.

Review Date: February 10, 2011

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Urology Care Foundation

The Urology Care Foundation is committed to promoting urology research and education. We work with researchers, healthcare professionals, patients and caregivers to improve patients' lives. The Urology Care Foundation is the official foundation of the American Urological Association (AUA)—an organization of roughly 19,000 urologists and was formerly known as the AUA Foundation.

Review Date: February 26, 2013

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Wound, Ostomy and Continence Nurses Society

Wound, Ostomy and Continence Nursing Society (WOCN) is a professional, international nursing society of nurse professionals who are experts in the care of patients with wound, ostomy and continence problems. WOC nurses manage conditions such as stomas, draining wounds, fistulas, vascular ulcers, pressure ulcers, neuropathic wounds, urinary incontinence, fecal incontinence, and functional disorders of the bowel and bladder. The WOCN Society is deeply involved in setting guidelines for patient care.

Review Date: October 27, 2011

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