U.S. Department of Health and Human Services

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Organ Donation

Division of Transplantation, Healthcare Systems Bureau/HRSA

The Division of Transplantation (DoT) is within the Department of Health and Human Services, Health Resources and Services Administration's Healthcare Systems Bureau (HSB). DoT is the primary federal entity responsible for oversight of the organ and blood stem cell transplant systems in the U.S. and for initiatives to increase the level of organ donation in this country. HSB's Organ Donation and Transplantation programs extend and enhance the lives of individuals with end-stage organ failure for whom an organ transplant is the most appropriate therapeutic treatment. Key elements of the program include the Organ Procurement and Transplantation Network (OPTN), the national system that allocates and distributes donor organs to individuals waiting for an organ transplant; the Scientific Registry of Transplant Recipients (SRTR), a national database of statistics related to solid organ transplantation -- kidney, liver, pancreas, intestine, heart, and lung; and efforts to increase the supply of donor organs made available for transplantation.

Review Date: July 25, 2011

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Health Resources and Services Administration Information Center

The HRSA Information Center provides publications, information, resources, and referrals about health care services for medically underserved individuals and populations. Live, online assistance is available between 8:30 a.m. and 5:00 p.m. eastern time, Monday through Friday, by accessing the HRSA Information Center’s (IC’s) Live Help service. Through the Information Center, health care professionals, policymakers, researchers, and members of the public can obtain material on HRSA-supported public health programs including maternal and child health, oral health, HIV/AIDS, community health, minority health, rural health, health professions training and the planning, development and delivery of high quality ambulatory health care in medically underserved areas. Information specialists provide information and referrals and the web site contains searchable databases of community health centers and health related organizations. Spanish-speaking information specialists are available.

Review Date: March 08, 2013

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Healthcare Systems Bureau, Health Resources and Services Administration

HRSA's Healthcare Systems Bureau (HSB) protects the public health and improves the health of individuals through an array of programs that provide national leadership and direction in targeted areas. HSB oversees the nation’s organ, bone marrow and cord blood donation and transplantation systems, poison control and vaccine injury compensation programs, and a drug discount program for certain safety-net health care providers. HSB's Organ Donation and Transplantation programs extend and enhance the lives of individuals with end-stage organ failure for whom an organ transplant is the most appropriate therapeutic treatment. HSB also manages Hill-Burton free or reduced-cost care programs.

Review Date: August 02, 2011

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American Association of Kidney Patients

The American Association of Kidney Patients is a voluntary patient organization, which has been dedicated to improving the lives of fellow kidney patients and their families by helping them deal with the physical, emotional and social impact of kidney disease for more than 40 years. The programs offered by AAKP inform and inspire patients and their families to better understand their condition, adjust more readily to their circumstances and assume more normal, productive lives. To accomplish these goals, AAKP engages in a variety of educational and supportive programs designed: 1) to assist patients both to learn more about their disease and to become active participants in planning and managing their treatment; 2) to improve patient understanding of and access to rehabilitation; 3) to work together for the improvement of public programs that help kidney patients meet their financial and personal needs; 4) to reflect the views and concerns of patients to public policy makers and others in the renal community; 5) and to provide a lifeline for patients in need of emotional support and reassurance that only other patients can provide. AAKP is a national organization that reaches one million people yearly affected by kidney disease, including patients, family members, renal professionals and friends. It is the only national kidney patient organization directed by kidney patients for kidney patients.

Review Date: November 15, 2011

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American Kidney Fund

The American Kidney Fund was founded in 1971 to save the life of one person who needed help paying for dialysis. Forty years later, AKF has become the leading source of direct, treatment-related financial assistance to people in the United States who are living with chronic kidney disease. In 2010, AKF provided treatment-related financial assistance to more than 101,000 dialysis patients nationwide. The work of the American Kidney Fund goes beyond financial assistance. It is also AFK’s mission to provide health education to people with, and at risk for, kidney disease.

Review Date: May 03, 2011

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Asian American Donor Program

Asian American Donor Program (AADP) is a National Marrow Donor Program (NMDP) recruitment agency which provides education regarding the issue of unrelated marrow donation, and opportunities for the general public to participate on the National Registry. The Asian American Donor Program is funded by NMDP to encourage everyone, specifically the minority communities to be HLA-typed (Human Leukocyte Antigen-typed). AADP staff provide educational presentations and organize typing drives for universities, corporations, churches, community service groups, etc.

Review Date: January 07, 2009

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Association for Macular Diseases

The Association for Macular Diseases was formed by patients in 1977 to promote education on and research into macular diseases and to provide support for afflicted persons and their families. It also disseminates information on resources and encourages the post-mortem donation of eyes with macular disease for research purposes. We respond to Spanish inquiries by mail only.

Review Date: January 09, 2009

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Donate Life America

Donate Life America is a 501(c)3 not-for-profit alliance of national organizations and state teams across the United States committed to increasing organ, eye and tissue donation. Donate Life America manages and promotes the national brand for donation, Donate Life, and assists Donate Life State Teams and national partners in facilitating high-performing donor registries; developing and executing effective multi-media donor education programs; and motivating the American public to register now as organ, eye and tissue donors.

Review Date: February 03, 2012

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Eye Bank Association of America, Inc.

The Eye Bank Association of America (EBAA), established in 1961, is the oldest transplant association in the nation. The EBAA champions the restoration of sight through core services to its members which advance donation, transplantation and research in their communities and throughout the world. It has led the transplantation field with the establishment of medical standards for the distribution of eyes and comprehensive training and certification programs for eye banking personnel. These standards have been used as models for other transplantation organizations. Member eye banks operate in the United States, Canada, Europe, the Middle East, and Asia. These eye banks make possible approximately 50,000 sight-restoring corneal transplants annually.

Review Date: December 30, 2011

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HelpHOPELive

HelpHOPELive (formerly, the National Transplant Assistance Fund) helps families address financial hardships arising from uninsured medical expenses related to transplantation (solid organ, bone marrow, stem cell or tissue) and catastrophic injury (spinal cord, traumatic brain and/or amputation). Established in 1983 by medical professionals, NTAF is a 501(c)(3) nonprofit organization, with headquarters in Radnor, Pennsylvania, that provides expert fundraising guidance to patients, families and communities nationwide, while offering fiscal accountability for funds raised.

Review Date: October 17, 2011

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LifeNet

LifeNet, founded in 1982, addresses the need for human organs and tissues for transplantation. A non-profit, federally designated Organ Procurement Organization (OPO), LifeNet provides donation systems for heart, lung, liver, kidney, pancreas, and other organs for transplant. LifeNet is the largest non-profit, full-service allograft tissue bank in the world, providing human allograft tissue transplants to over 200,000 patients annually world-wide.

Review Date: November 04, 2010

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National Kidney Foundation

The National Kidney Foundation (NKF) is dedicated to preventing kidney and urinary tract diseases, improving the health and well-being of individuals and families affected by these diseases and increasing the availability of all organs for transplantation. With more than 30 local offices nationwide, the NKF: Provides early detection screenings and other vital patient and community services, conducts extensive public and professional education, advocates for patients through legislative action, promotes organ donation, and supports kidney research to identify new treatments. The NKF relies on individual and corporate donations, foundation and government grants, membership and special events to support its range of programs, services and initiatives.

Review Date: June 21, 2011

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Organ Procurement and Transplantation Network

The Organ Procurement and Transplantation Network (OPTN) is the unified transplant network established by the United States Congress under the National Organ Transplant Act of 1984. The United Network for Organ Sharing (UNOS), based in Richmond, Virginia, administers the OPTN under contract with the Health Resources and Services Administration of the U.S. Department of Health and Human Services.

Review Date: October 07, 2010

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Partnership for Organ Donation

The Partnership for Organ Donation is an independent, non-profit organization dedicated to saving and improving lives by closing the gap between the number of organ transplants that are possible and the number of organ transplants that actually occur. The Partnership fulfills its mission by: researching, developing and delivering state-of-the-art programs to educate and motivate health professionals and the public to fulfill their roles in solving the organ donor problem; providing leadership in focusing health care professionals, policy makers, and the public on the most relevant issues and actions that will contribute to solving the organ shortage; and fostering collaboration among key organizations and groups to share information, coordinate efforts, and effect lasting improvements in organ donation.

Review Date: December 16, 2008

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The Living Bank

The Living Bank is the oldest and largest organ donor education organization in the United States. It is a private, non-profit organization dedicated to the enhancement of organ and tissue donation. The Living Bank cooperates at every opportunity with each segment of the organ donor and transplant community; supporting any group or organization whose activities generate more committed organ donors or facilitate actual organ donation. The Living Donor Bank Program advocates and supports living donors before, during and after the donation process. Travel Stipend/Donor Support Program assists living donors in arranging transportation and provides stipends if they must travel to donate. Donor Education Program educates the public regarding the donation and use of organs and tissues and provide donor cards.

Review Date: May 12, 2011

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Transplant Recipients International Organization, Inc.

TRIO is a not-for-profit, international organization commited to improving the quality of life of transplant candidates, recipients, their families and the families of organ and tissue donors. Through its international, a network of chapters throughout the United States, Italy, and Japan, and members-at-large, TRIO provides a range of services to its community, including awareness, support, education, and advocacy.

Review Date: December 16, 2008

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United Network for Organ Sharing

The United Network for Organ Sharing (UNOS) coordinates the nation’s organ transplant system, providing vital services to meet the needs of men, women and children awaiting lifesaving organ transplants. Based in Richmond, Va., UNOS is a private, nonprofit membership organization. UNOS members encompass every transplant hospital, tissue matching laboratory and organ procurement organization in the United States, as well as voluntary health and professional societies, ethicists, transplant patients and organ donor advocates.

Review Date: April 20, 2011

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University of Florida College of Medicine

The College of Medicine strives to improve health care in Florida, our nation, and the world through excellence and consistently superior leadership in education, clinical care, education, discovery, and service.

Review Date: April 02, 2012

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