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Organ and Tissue Transplant

Division of Transplantation, Healthcare Systems Bureau/HRSA

The Division of Transplantation (DoT) is within the Department of Health and Human Services, Health Resources and Services Administration's Healthcare Systems Bureau (HSB). DoT is the primary federal entity responsible for oversight of the organ and blood stem cell transplant systems in the U.S. and for initiatives to increase the level of organ donation in this country. HSB's Organ Donation and Transplantation programs extend and enhance the lives of individuals with end-stage organ failure for whom an organ transplant is the most appropriate therapeutic treatment. Key elements of the program include the Organ Procurement and Transplantation Network (OPTN), the national system that allocates and distributes donor organs to individuals waiting for an organ transplant; the Scientific Registry of Transplant Recipients (SRTR), a national database of statistics related to solid organ transplantation -- kidney, liver, pancreas, intestine, heart, and lung; and efforts to increase the supply of donor organs made available for transplantation.

Review Date: July 25, 2011

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Health Resources and Services Administration - HRSA
U.S. Department of Health and Human Services

The Health Resources and Services Administration (HRSA), an agency of the U.S. Department of Health and Human Services, is the primary Federal agency for improving access to health care services for people who are uninsured, isolated or medically vulnerable. HRSA provides leadership and financial support to health care providers, and through its grantees, health care to uninsured people, people living with HIV/AIDS, and pregnant women, mothers and children. HRSA trains health professionals to improve systems of care in rural communities, and oversees organ, bone marrow and cord blood donation. It supports programs that prepare against bioterrorism, compensates individuals harmed by vaccination, and maintains databases that protect against health care malpractice and health care waste, fraud and abuse.

Review Date: July 26, 2011

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Healthcare Systems Bureau, Health Resources and Services Administration

HRSA's Healthcare Systems Bureau (HSB) protects the public health and improves the health of individuals through an array of programs that provide national leadership and direction in targeted areas. HSB oversees the nation’s organ, bone marrow and cord blood donation and transplantation systems, poison control and vaccine injury compensation programs, and a drug discount program for certain safety-net health care providers. HSB's Organ Donation and Transplantation programs extend and enhance the lives of individuals with end-stage organ failure for whom an organ transplant is the most appropriate therapeutic treatment. HSB also manages Hill-Burton free or reduced-cost care programs.

Review Date: August 02, 2011

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American Association of Kidney Patients

The American Association of Kidney Patients is a voluntary patient organization, which has been dedicated to improving the lives of fellow kidney patients and their families by helping them deal with the physical, emotional and social impact of kidney disease for more than 40 years. The programs offered by AAKP inform and inspire patients and their families to better understand their condition, adjust more readily to their circumstances and assume more normal, productive lives. To accomplish these goals, AAKP engages in a variety of educational and supportive programs designed: 1) to assist patients both to learn more about their disease and to become active participants in planning and managing their treatment; 2) to improve patient understanding of and access to rehabilitation; 3) to work together for the improvement of public programs that help kidney patients meet their financial and personal needs; 4) to reflect the views and concerns of patients to public policy makers and others in the renal community; 5) and to provide a lifeline for patients in need of emotional support and reassurance that only other patients can provide. AAKP is a national organization that reaches one million people yearly affected by kidney disease, including patients, family members, renal professionals and friends. It is the only national kidney patient organization directed by kidney patients for kidney patients.

Review Date: November 15, 2011

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American Association of Tissue Banks

The American Association of Tissue Banks (AATB) is an educational and scientific, tax exempt organization founded in 1976. Its mission is to facilitate the provision of transplantable tissues of uniform high qualities sufficient to meet national needs. To fulfill this mission, the AATB publishes Standards to ensure that the conduct of tissue banking meets acceptable norms of technical and ethical performance. The Association conducts an Accreditation Program for establishments that retrieve, process, store or distribute human tissue for transplant. A Certification Program is administered for tissue bank personnel to ensure that tissue-banking activities are being performed in a professional manner consistent with the Standards of the Association. To provide for the exchange of important scientific information, the AATB also hosts meetings, seminars and workshops. The Association's income is derived from membership dues, accreditation fees and meeting revenues.

Review Date: February 05, 2009

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American Society of Transplantation

The American Society of Transplantation (AST) was founded in 1982 and is an organization of more than 2,600 transplant professionals dedicated to research, education, advocacy and patient care in transplantation. Our goal is to offer a forum for the exchange of knowledge, scientific information and expertise in the field of transplantation.

Review Date: August 28, 2008

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Asian American Donor Program

Asian American Donor Program (AADP) is a National Marrow Donor Program (NMDP) recruitment agency which provides education regarding the issue of unrelated marrow donation, and opportunities for the general public to participate on the National Registry. The Asian American Donor Program is funded by NMDP to encourage everyone, specifically the minority communities to be HLA-typed (Human Leukocyte Antigen-typed). AADP staff provide educational presentations and organize typing drives for universities, corporations, churches, community service groups, etc.

Review Date: January 07, 2009

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Bioethics Research Library, Georgetown University

The Bioethics Research Library at Georgetown University (BRL) is a specialized, non-circulating collection of over 300,000 books, legal publications, regulations, codes, government documents, and other relevant materials related to biomedical and professional ethics written in over 20 languages. This collection functions both as a reference library for the public and as a research resource for scholars world-wide. The library’s databases on bioethics literature, organizations, and syllabi are accessible on the library web site and contain many links to full-text materials. Other sources of full-text documents on this site include the digital archives of U.S. Bioethics Commissions, and historical documents on genetics and ethics.

Review Date: August 16, 2012

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Blood & Marrow Transplant Information Network

Blood & Marrow Transplant Information Network (BMT InfoNet) is dedicated to providing transplant patients, survivors and their loved ones with emotional support and high quality, easy-to-understand information about bone marrow, peripheral blood stem cell and cord blood transplants.

Review Date: April 12, 2012

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Bone Marrow Foundation

The Bone Marrow Foundation is dedicated to improving the quality of life for bone marrow, stem cell and cord blood transplant patients and their families by providing vital financial assistance, emotional support, and comprehensive educational programs. The Foundation does not limit assistance to a specific disease, type of transplant, or age range. Patients and families considering or going through a bone marrow transplant can access general information and counseling services via the Foundation's website or by calling the toll-free information line.

Review Date: September 15, 2011

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Center for International Blood and Marrow Transplant Research

CIBMTR collaborates with the global scientific community to advance hematopoietic cell transplantation and cellular therapy research worldwide. A combined research program of the National Marrow Donor Program® and the Medical College of Wisconsin, CIBMTR facilitates critical research that has led to increased survival and an enriched quality of life for thousands of patients. Our prospective and observational research is accomplished through scientific and statistical expertise, a large network of transplant centers and a clinical database of 350,000 transplant recipients. CIBMTR has a broad range of research activities, but their focus is narrow. Patients. They are the reason CIBMTR exists. Patients count on CIBMTR to discover and apply the best therapies that research has identified, and to never let up in our efforts to improve those therapies. The Center's activities include the following: Lead and conduct research studies;collect and maintain outcomes data; provide access to outcomes data; provide access to research repository samples; provide statistical expertise to researchers; provide education, guidelines and training.

Review Date: March 30, 2012

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Donate Life America

Donate Life America is a 501(c)3 not-for-profit alliance of national organizations and state teams across the United States committed to increasing organ, eye and tissue donation. Donate Life America manages and promotes the national brand for donation, Donate Life, and assists Donate Life State Teams and national partners in facilitating high-performing donor registries; developing and executing effective multi-media donor education programs; and motivating the American public to register now as organ, eye and tissue donors.

Review Date: February 03, 2012

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Eye Bank Association of America, Inc.

The Eye Bank Association of America (EBAA), established in 1961, is the oldest transplant association in the nation. The EBAA champions the restoration of sight through core services to its members which advance donation, transplantation and research in their communities and throughout the world. It has led the transplantation field with the establishment of medical standards for the distribution of eyes and comprehensive training and certification programs for eye banking personnel. These standards have been used as models for other transplantation organizations. Member eye banks operate in the United States, Canada, Europe, the Middle East, and Asia. These eye banks make possible approximately 50,000 sight-restoring corneal transplants annually.

Review Date: December 30, 2011

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HelpHOPELive

HelpHOPELive (formerly, the National Transplant Assistance Fund) helps families address financial hardships arising from uninsured medical expenses related to transplantation (solid organ, bone marrow, stem cell or tissue) and catastrophic injury (spinal cord, traumatic brain and/or amputation). Established in 1983 by medical professionals, NTAF is a 501(c)(3) nonprofit organization, with headquarters in Radnor, Pennsylvania, that provides expert fundraising guidance to patients, families and communities nationwide, while offering fiscal accountability for funds raised.

Review Date: October 17, 2011

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International Society for Heart and Lung Transplantation

The International Society for Heart and Lung Transplantation (ISHLT) is a not-for-profit organization dedicated to the advancement of the science and treatment of end-stage heart and lung diseases. The purposes of the Society are: to associate persons interested in the fields of heart and lung transplantation, end-stage heart and lung disease, and related sciences; to encourage and stimulate basic and clinical research in these disciplines and to promote new therapeutic strategies; to hold scientific meetings featuring presentations and discussions relevant to these disciplines; to sponsor a scientific journal for the publication of manuscripts related to these disciplines; to establish and maintain an international registry for heart and lung transplantation; and to award research grants and establish endowments for the study of these disciplines.

Review Date: February 09, 2009

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Kidney and Urology Foundation of America

Kidney & Urology Foundation of America (KUFA) is a national, not-for-profit organization dedicated to helping people with kidney and urologic diseases and individuals waiting for organ and tissue transplants.

Review Date: March 17, 2011

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LifeNet

LifeNet, founded in 1982, addresses the need for human organs and tissues for transplantation. A non-profit, federally designated Organ Procurement Organization (OPO), LifeNet provides donation systems for heart, lung, liver, kidney, pancreas, and other organs for transplant. LifeNet is the largest non-profit, full-service allograft tissue bank in the world, providing human allograft tissue transplants to over 200,000 patients annually world-wide.

Review Date: November 04, 2010

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Organ Procurement and Transplantation Network

The Organ Procurement and Transplantation Network (OPTN) is the unified transplant network established by the United States Congress under the National Organ Transplant Act of 1984. The United Network for Organ Sharing (UNOS), based in Richmond, Virginia, administers the OPTN under contract with the Health Resources and Services Administration of the U.S. Department of Health and Human Services.

Review Date: October 07, 2010

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Oxalosis and Hyperoxaluria Foundation

The mission of the Oxalosis and Hyperoxaluria Foundation (OHF) is to seek the cause, improve the clinical treatment and discover a cure for Hyperoxaluria and Oxalosis.

Review Date: August 27, 2008

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Partnership for Organ Donation

The Partnership for Organ Donation is an independent, non-profit organization dedicated to saving and improving lives by closing the gap between the number of organ transplants that are possible and the number of organ transplants that actually occur. The Partnership fulfills its mission by: researching, developing and delivering state-of-the-art programs to educate and motivate health professionals and the public to fulfill their roles in solving the organ donor problem; providing leadership in focusing health care professionals, policy makers, and the public on the most relevant issues and actions that will contribute to solving the organ shortage; and fostering collaboration among key organizations and groups to share information, coordinate efforts, and effect lasting improvements in organ donation.

Review Date: December 16, 2008

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United Network for Organ Sharing

The United Network for Organ Sharing (UNOS) coordinates the nation’s organ transplant system, providing vital services to meet the needs of men, women and children awaiting lifesaving organ transplants. Based in Richmond, Va., UNOS is a private, nonprofit membership organization. UNOS members encompass every transplant hospital, tissue matching laboratory and organ procurement organization in the United States, as well as voluntary health and professional societies, ethicists, transplant patients and organ donor advocates.

Review Date: April 20, 2011

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