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Arthritis

National Center for Chronic Disease Prevention and Health Promotion - NCCDPHP
Centers for Disease Control and Prevention

The CDC's National Center for Chronic Disease Prevention and Health Promotion (NCCDPHP) consists of nine divisions that support a variety of activities that improve the nation's health by preventing chronic diseases and their risk factors. Program activities include supporting states’ implementation of public health programs; public health surveillance; translation research; and developing tools and resources for stakeholders at the national, state, and community levels. The Center’s surveillance activities provide data and statistics relevant to each of its program areas.

Review Date: August 09, 2011

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NIH National Institute of Arthritis and Musculoskeletal and Skin Diseases - NIAMS

The mission of the National Institute of Arthritis and Musculoskeletal and Skin Diseases is to support research into the causes, treatment, and prevention of arthritis and musculoskeletal and skin diseases; the training of basic and clinical scientists to carry out this research; and the dissemination of information on research progress in these diseases.

Review Date: July 20, 2011

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NIH National Institute of Arthritis and Musculoskeletal and Skin Diseases Information Clearinghouse

The clearinghouse provides information about various forms of arthritis and rheumatic disease and bone, muscle, and skin diseases in English, Spanish and Chinese. It distributes patient and professional education materials and refers people to other sources of information.

Review Date: July 20, 2011

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American Behcet's Disease Association

The American Behcet's Disease Association, formerly the American Behcet's Association, Inc., was established in 1978 to find a cure for Behcet's disease and to gather and disseminate information about the disease to the public and health professionals. Behcet's disease is an inflammatory and ulcerative condition with periodic attacks that can have serious complications, such as loss of vision.

Review Date: November 21, 2008

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American College of Rheumatology

This is an organization of physicians, health professionals, and scientists that serves its members through programs of education, research and advocacy that foster excellence in the care of people with arthritis, and rheumatic, and musculoskeletal diseases.

Review Date: August 28, 2008

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American Juvenile Arthritis Organization

The American Juvenile Arthritis Organization (AJAO), a Council of the Arthritis Foundation, is devoted to serving the special needs of children, teens, and young adults with childhood rheumatic diseases and their families. AJAO offers both support and information through national and local programs that serve the needs of families and friends of the afflicted, and health professionals. The Organization serves as a clearinghouse of information for the public; sponsors an annual national conference; monitors and promotes legislation that affects children with arthritis; sponsors research through its parent body. The Organization's membership is comprised of parents, family members, doctors, nurses, occupational and physical therapists, social workers, and young adults. The Organization responds to mail, telephone, and electronic mail inquiries.

Review Date: January 05, 2009

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American Occupational Therapy Association, Inc.

The American Occupational Therapy Association is a national professional society established in 1917 to represent the interests and concerns of occupational therapy practitioners, and to improve the quality of occupational therapy services. Occupational therapy is a vital health care service whose practitioners help to restore and sustain the highest quality of productive life to persons recovering from illnesses or injuries, or coping with developmental disabilities or changes resulting from the aging process. Current AOTA membership numbers approximately 42,000, including occupational therapists, occupational therapy assistants, and occupational therapy students. Members reside in all 50 states, the District of Columbia, Puerto Rico, and 65 foreign countries. AOTA's major programs and activities are directed toward assuring the quality of occupational services; improving consumer access to healthcare services, and promoting the professional development of members.

Review Date: February 14, 2013

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American Physical Therapy Association

The American Physical Therapy Association (APTA), is a national professional organization representing physical therapists, physical therapist assistants, and students throughout the United States. The Association's efforts are directed toward serving its members and the public by increasing the understanding of the physical therapist's role in the nation's health care system and by fostering improvements in physical therapy education, practice and research. Headquartered in Alexandria, Virginia, APTA works to fulfill its objectives in the areas of accreditation, clinical research, continuing education, legislative representation, minority and international issues, practice issues, publications, and more.

Review Date: January 19, 2012

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Arthritis Foundation

The Arthritis Foundation is the only national not-for-profit organization that supports the more than 100 types of arthritis and related conditions. Founded in 1948, the Arthritis Foundation has multiple service points located throughout the country. The Arthritis Foundation is the largest private, not-for-profit contributor to arthritis research in the world, funding more than $380 million in research grants since 1948. The foundation helps people take control of arthritis by providing public health education; pursuing public policy and legislation; and conducting evidence-based programs to improve the quality of life for those living with arthritis.

Review Date: January 11, 2012

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Division of Adult and Community Health, National Center for Chronic Disease Prevention and Health Promotion/CDC

CDC’s National Center for Chronic Disease Prevention and Health Promotion (NCCDPHP) is at the forefront of the nation's efforts to prevent and control chronic diseases. The Division of Adult and Community Health (DACH) is charged with managing programs that provide cross-cutting, chronic disease and health promotion expertise. DACH's activities include Communities Putting Prevention to Work, a program developed to impact the nation’s health by reducing chronic diseases related to obesity and tobacco. In addition to supporting programs that foster healthy aging and healthy communities, DASH's Prevention Research Centers (PRC), an interdependent network of community, academic, and public health partners, conduct prevention research and promote the wide use of practices proven to promote good health.

Review Date: July 13, 2011

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Mayo Foundation for Medical Education and Research

Mayo Foundation is a charitable, not-for-profit corporation with a mission to provide the highest quality, compassionate care at a reasonable cost through a physician-led team of diverse people working together in clinical practice, education and research in a unified multi-campus system. More than 400,000 patients a year come to its outpatient clinics and hospitals in three states -- Minnesota (Rochester), Florida (Jacksonville), and Arizona (Scottsdale).

Review Date: November 02, 2010

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National Marfan Foundation

The National Marfan Foundation was founded in 1981 by patients and families of patients with Marfan Syndrome, a genetic disorder of the connective tissue. The organization has three goals: to educate patients, physicians, and the public about Marfan syndrome and related connective tissue disorders; to support affected people and their families; and to foster and develop research. The NMF holds an annual conference in the summer.

Review Date: April 20, 2009

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National Pain Foundation

The National Pain Foundation (NPF), a non-profit, 501(c)(3) organization, was established in 1998 to advance functional recovery of persons in pain through information, education and support. The goal of NPF is to empower patients by helping them become actively involved in the design of their treatment plan, exploring both traditional and complementary approaches to pain management. The National Pain Foundation provides an easy-to-use source of information and support for pain patients and their families. Through education, materials and programs, the NPF works to erase the stigma associated with pain and pain treatment. The NPF web site and other materials offer information about chronic pain conditions such as arthritis and complex regional pain syndrome (CRPS) or reflex sympathetic dystrophy (RSD).

Review Date: September 19, 2011

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National Psoriasis Foundation

The National Psoriasis Foundation is the world’s largest nonprofit patient advocacy organization serving the 7.5 million Americans with psoriasis, the most common autoimmune disease in the country, and psoriatic arthritis, an inflammatory arthritis that affects the joints and tendons. Our mission is to find a cure for psoriasis and psoriatic arthritis and to eliminate their devastating effects through research, advocacy and education. The Psoriasis Foundation has grown to become the largest charitable funder of psoriatic disease research worldwide and directly supports the most promising early-state research and emerging scientists. Advocacy staff work to shape the laws and policies that affect people with psoriatic diseases by advancing a public policy agenda to secure more federal funding for psoriatic disease research and work to remove barriers that limit access to care. The Foundation provides extensive patient and medical education through events, publications and medical outreach. Headquartered in Portland, Ore., the Foundation has local community-based divisions in Los Angeles, San Diego, Northern California, Chicago, Dallas/Ft. Worth, South Florida, Florida West Coast, New York City and Portland, Ore.

Review Date: March 20, 2013

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Spondylitis Association of America

The Spondylitis Association of America (SAA) is a national, non-profit, self-help organization that provides information to patients and health professionals on ankylosing spondylitis and related diseases (Reiter's Syndrome and psoriatic arthritis, spondylitis of inflammatory bowel disease and undifferentiated spondyarthropathy) through education, awareness, advocacy and research. Information and most local programs are free. SAA has a yearly fee for members. Services include educational materials, support groups, and an active public message board, plus a toll-free information line.

Review Date: July 13, 2010

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The Myositis Association

The Myositis Association (TMA) is a non-profit organization committed to helping people affected by inflammatory myopathies through information, advocacy and support. TMA provides services to those diagnosed with: polymyositis (PM), dermatomyositis (DM), inclusion-body myositis (IBM), and juvenile myositis (JM). TMA programs for people with inflammatory myopathies (PM, DM, IBM and JM) include: mutual aid network; clearinghouse among patients, physicians and scientists; newsletters offering the latest information on research, treatments and health-related articles; electronic publications for health care professionals; and programs specific to the needs of the juvenile myositis community. Annual conference features world-renowned speakers. TMA has the world's largest database of myositis information for collaboration with their members and medical scientists. TMA funds grants and fellowships for myositis research.

Review Date: August 04, 2010

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