You may want to learn about genetic testing if you have a family history of inherited diseases or belong to an ethnic group with a higher risk of a specific inherited disease. Read this fact sheet to find out about genetic testing.
Review Date: August 04, 2011
NIH Office of Rare Diseases Research
Find patient assistance programs that help patients with rare diseases obtain life-saving or life-sustaining medication they could not otherwise afford.
Review Date: February 05, 2013
National Organization for Rare Disorders
Call 1-800-926-4797 for information and support for families after the initial diagnosis of Prader-Willi syndrome, a genetic cause of life-threatening obesity in children.
Review Date: January 29, 2012
Prader-Willi Syndrome Association - USA