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Autoimmune Disorders

NIH National Institute of Environmental Health Sciences - NIEHS

The mission of the NIEHS is to reduce the burden of human illness and disability by understanding how the environment influences the development and progression of human disease. To have the greatestimpact on preventing disease and improving human health, the NIEHS focuses on basic science, disease-oriented research, global environmental health, and multidisciplinary training for researchers. The NIEHS achieves its mission through: Extramural research and training, funded by grants and contracts, to scientists, environmental health professionals, and other groups worldwide, Intramural research conducted by scientists at the NIEHS facility and in partnership with scientists at universities and hospitals, Toxicological testing and test validation by the National Toxicology Program, and Outreach and communications programs that provide reliable health information to the public and scientific resources to researchers.

Review Date: July 12, 2011

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American Autoimmune Related Diseases Association, Inc.

The American Autoimmune Related Diseases Association (AARDA) is the only national nonprofit health agency dedicated to bringing a national focus to autoimmunity, the major cause of serious chronic diseases. AARDA is dedicated to the eradication of autoimmune diseases and the alleviation of suffering and the socioeconomic impact of autoimmunity through fostering and facilitating collaboration in the areas of education, public awareness, research, and patient services in an effective, ethical and efficient manner. AARDA provides patients with information and referrals through its national toll-free patient information line, 1-800-598-4668. AARDA also provides information on its Web site, www.aarda.org.

Review Date: May 23, 2011

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Foundation for Sarcoidosis Research

The Foundation for Sarcoidosis Research (FSR) is a nonprofit organization dedicated to improving care for sarcoidosis patients and to finding a cure for this disease. Since establishment in 2000, FSR has worked diligently to provide resources to thousands of patients, their families and their physicians as well as funded several domestic and international research efforts. FSR has a long history of educating consumers and their health care professionals as well as providing direct support to critically needed research. FSR's annual K.I.S.S. (Kick In to Stop Sarcoidosis®)Awareness Campaign reaches hundreds of thousands with a combination of education events, print articles, televised health reports, and public service announcements.

Review Date: May 12, 2011

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Graves' Disease and Thyroid Foundation

The National Graves' Disease Foundation is the only national, non-profit, educational organization open exclusively to people with Graves' disease. This lay organization is also available to families, friends, and health care professionals.

Review Date: December 10, 2008

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Immune Deficiency Foundation

The Immune Deficiency Foundation (IDF) is a nonprofit, national, voluntary, health organization dedicated to promoting and supporting research into the causes, prevention, treatment, and cure of primary immunodeficiency diseases; gathering and disseminating information concerning research and treatment of these diseases; increasing public awareness; and establishing chapters in each State. Primary Immunodeficiency diseases (ranging in prevalence from 1 in 500 individuals to 30 to 50 cases yearly in the U.S.) are a group of diseases which occur when part of the body's immune system components is missing or does not function properly. This organization is supported by grants and donations from concerned individuals and groups.

Review Date: March 11, 2009

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LFA, Greater Washington Chapter

The Lupus Foundation of Greater Washington provides current information, educational programs, and outreach services to improve the quality of lives for people with lupus while also supporting research.

Review Date: May 25, 2012

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Lupus Foundation of America

The Lupus Foundation of America is the nation’s leading nonprofit voluntary health organization dedicated to finding the causes and cure for lupus. The LFA seeks to improve the diagnosis and treatment of lupus, support individuals and families affected by the disease, increase awareness of lupus among health professionals and the public. The LFA operates programs of research, education and support through its nationwide network of chapters, branches and support groups.

Review Date: March 30, 2011

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Lupus Research Institute

The Lupus Research Institute is uniquely dedicated to novel research in lupus. Recognizing that most major medical breakthroughs come from unexpected directions, the LRI fosters and supports only the highest-ranked new science to prevent, treat and cure lupus.

Review Date: September 16, 2010

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Multiple Sclerosis Association of America

The Multiple Sclerosis Association of America (MSAA) is a national nonprofit organization dedicated to enriching the quality of life for everyone affected by multiple sclerosis. MSAA provides ongoing support and direct services to these individuals with MS and the people close to them. MSAA also serves to promote greater understanding of the needs and challenges of those who face physical obstacles. In addition to a variety of programs and services - such as consultations, equipment distribution, MRI diagnostic funding, and public awareness campaigns - MSAA also provides valuable information through its magazine and other literature.

Review Date: January 03, 2011

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Multiple Sclerosis Foundation, Inc.

The Multiple Sclerosis Foundation, Inc. (MSF) provides information, referral and support services to professionals, those diagnosed with multiple sclerosis, family members and friends. The mission of the MSF is to provide nationally accessible programs and support services to those persons affected by MS to help them maintain their health, safety, self-sufficiency, and personal well-being; and to heighten public awareness of multiple sclerosis in order to elicit financial support for the MSF's programs and services and promote understanding for those diagnosed with the illness.

Review Date: August 30, 2012

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Myasthenia Gravis Foundation of America, Inc.

The mission of Myasthenia Gravis Foundation of America, Inc. is to finding a cure for myasthenia gravis and closely related disorders, to improve treatment options and providing information and support to people with myasthenia gravis through research, education, community programs and advocacy. Myasthenia gravis is a chronic neuromuscular, autoimmune disorder that causes varying degrees of weakness involving the voluntary muscles of the body, particularly those that control eye movements, eyelids, chewing, swallowing, coughing, facial expression, breathing and movements of the arms and legs. At present, the cause of myasthenia gravis is unknown, and there is no cure.

Review Date: December 11, 2008

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National Alopecia Areata Foundation

The National Alopecia Areata Foundation (NAAF) was established in 1981 as a support network for people who have this disorder, to disseminate information about it, and to raise funds for research. The Foundation provides information on alopecia areata, including suggestions for coping with it, cosmetically and psychologically; NAAF can also provide the names of local support groups. It is supported through donations.

Review Date: December 12, 2008

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National Eosinophilia-Myalgia Syndrome Network, Inc.

National Eosinophilia-Myalgia Syndrome Network, Inc. (NEMSN) is a non-profit organization dedicated to helping EMS survivors and their families by offering educational information and peer support. NEMSN is also committed to encouraging research to improve treatment for L-tryptophan-induced EMS and to increasing awareness of the cause and effects of the disease.

Review Date: September 24, 2009

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National Fibromyalgia Association

The National Fibromyalgia Association (NFA) is a nonprofit organization dedicated to increasing FM awareness among the public, media, government and medical communities. Through a variety of outreach programs, NFAC works to ensure that information is being distributed on an on going basis, which will educate, motivate and support efforts to physically and emotional aid people living with FM.

Review Date: May 01, 2009

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National Multiple Sclerosis Society

The National Multiple Sclerosis Society’s (NMSS) mission is to end the devastating effects of MS. Through its home office and 50-state network of chapters, NMSS helps each person address the challenges of living with MS. The Society helps people affected by MS by funding cutting-edge research, driving change through advocacy, facilitating professional education, and providing programs and services that help people with MS and their families move their lives forward.

Review Date: January 04, 2011

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Scleroderma Foundation

The mission of the Scleroderma Foundation is: 1)To help patients and their families cope with scleroderma through mutual support programs, peer counseling, physician referrals, and educational information. 2) To promote public awareness and education through patient and health professional seminars, literature, and publicity campaigns. 3) To stimulate and support research to improve and ultimately find the cause and cure of scleroderma and related diseases.

Review Date: December 15, 2011

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Sjogren's Syndrome Foundation, Inc.

The Sjogren's Syndrome Foundation (SSF) is a nonprofit organization established to educate patients and their families about Sjogren's Syndrome, increase public and professional awareness, and encourage research into new treatments and a cure. The SSF sponsors nearly 100 support groups throughout the U.S. and Canada. These groups, run by volunteers, provide members with the opportunity to share advice and tips for living more comfortably with Sjogren's. SSF Patients seminars, offering educational opportunities with expert speakers, are offered throughout the year and are open to the public.

Review Date: August 11, 2010

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The Myositis Association

The Myositis Association (TMA) is a non-profit organization committed to helping people affected by inflammatory myopathies through information, advocacy and support. TMA provides services to those diagnosed with: polymyositis (PM), dermatomyositis (DM), inclusion-body myositis (IBM), and juvenile myositis (JM). TMA programs for people with inflammatory myopathies (PM, DM, IBM and JM) include: mutual aid network; clearinghouse among patients, physicians and scientists; newsletters offering the latest information on research, treatments and health-related articles; electronic publications for health care professionals; and programs specific to the needs of the juvenile myositis community. Annual conference features world-renowned speakers. TMA has the world's largest database of myositis information for collaboration with their members and medical scientists. TMA funds grants and fellowships for myositis research.

Review Date: August 04, 2010

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