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Support Groups

Al-Anon Family Groups Headquarters, Inc.

Al-Anon is a mutual support program for persons who are affected by the compulsive drinking of a family member or friend. Alateen, a part of Al-Anon Family Groups, helps teenage sons and daughters of alcoholics to cope with problems in their homes. Groups provide direct services to individuals, family and friends of alcoholics, by providing information on alcoholism and sharing experience in coping with the disease, and by providing the opportunity to learn to grow spiritually. Al-Anon's program of recovery is adapted from Alcoholics Anonymous and is based upon the Twelve Steps, Twelve Traditions, and Twelve Concepts of Service.

Review Date: April 24, 2012

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Alcoholics Anonymous

Alcoholics Anonymous (AA) is an international fellowship of men and women who share their experiences with each other, so that they may solve their common problem and help others to recover from alcoholism. The only requirement for membership is a desire to stop drinking. There are no dues or fees for AA membership; the Organization is self-supporting through member contributions. AA is not allied with any sect, denomination, politics, organization, or institution; does not want to engage in any controversy, and neither endorses nor opposes any causes. The primary purpose of members is to stay sober and help other alcoholics to achieve sobriety. AA was founded in 1935 and currently has over 2 million members.

Review Date: October 11, 2011

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American Association of Kidney Patients

The American Association of Kidney Patients is a voluntary patient organization, which has been dedicated to improving the lives of fellow kidney patients and their families by helping them deal with the physical, emotional and social impact of kidney disease for more than 40 years. The programs offered by AAKP inform and inspire patients and their families to better understand their condition, adjust more readily to their circumstances and assume more normal, productive lives. To accomplish these goals, AAKP engages in a variety of educational and supportive programs designed: 1) to assist patients both to learn more about their disease and to become active participants in planning and managing their treatment; 2) to improve patient understanding of and access to rehabilitation; 3) to work together for the improvement of public programs that help kidney patients meet their financial and personal needs; 4) to reflect the views and concerns of patients to public policy makers and others in the renal community; 5) and to provide a lifeline for patients in need of emotional support and reassurance that only other patients can provide. AAKP is a national organization that reaches one million people yearly affected by kidney disease, including patients, family members, renal professionals and friends. It is the only national kidney patient organization directed by kidney patients for kidney patients.

Review Date: November 15, 2011

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American Fertility Association

The American Fertility Association (The AFA), a 501 (c) (3) national non-profit organization is a lifetime resource for infertility prevention, reproductive health and family building. AFA services and materials are provided free of charge to consumers and available to everyone without reservation. These services include leading-edge educational outreach events, an extensive online library with HD videos, a daily blog, a resource directory available for download on mobile devices, telephone and in-person coaching, and a toll-free support line.

Review Date: June 14, 2011

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American Self-Help Group Clearinghouse

Though its keyword-searchable online database, national helpline and Sourcebook, the American Self-Help Group Clearinghouse puts people in touch with any of over 1,200 national, international, model, and online self-help groups covering a wide range of illnesses, disabilities, addictions, bereavement, and stressful life situations. They also provide referrals to local self-help clearinghouses that exist in some states. The Clearinghouse provides information and consultation nationally to help people start new types of national self-help groups when none currently exist. Telephone services are available on weekdays from 8:30 a.m. to 5 p.m., EST.

Review Date: September 15, 2011

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Amyloidosis Support Groups

Amyloidosis Support Groups is a 501(c)3 Non Profit Corporation, dedicated to the support of amyloidosis patients, caregivers, and former caregivers. Their goals are to set up and help maintain peer support group meetings, and by raising funds through donations, help the groups to be self sustaining. ASG also maintains an online support listserv www.amyloidosisonline.com for over 1500 patients and caregivers, and an online support group for the hereditary and TTR form of amyloidosis www.familialonline.com .

Review Date: February 26, 2013

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Association for Neuro-Metabolic Disorders

The Association for Neuro-Metabolic Disorders, (ANMD), a non-profit organization, was founded in 1984 at the University of Michigan Medical Center, Ann Arbor. ANMD's primary objective is to serve as an advocate organization for families of patients with neuro-metabolic disorders such as phenylketonuria (PKU), maple syrup urine disease (MSUD), galactosemia and biotinidase. ANMD provides educational information for parents and children; provides networking information on support groups for new parents; supports scientific research into the treatments of neuro-metabolic disorders.

Review Date: March 04, 2009

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Association for Research of Childhood Cancer

The Association for Research of Childhood Cancer (AROCC) is a nonprofit organization, staffed by volunteers, formed in 1971 by parents who had lost children to pediatric cancer. The seven charter members determined to raise funds by various projects in order to provide "seed money" to various pediatric research centers in order to find a cure and, ultimately, prevent the types of cancer that attack children. Funds are also obtained from community activities; memorial contributions; and donations from businesses, private foundations, and concerned individuals. As a parent support group AROCC aids parents of young cancer victims by distributing information on treatment, emotional aspects, and patient services via their publications.

Review Date: January 15, 2009

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Attention Deficit Disorder Resources

ADD Resources maintains an active website with over one hundred articles and 200 links to other sites that complement their material. They have compiled two collections of ideas and directories to help the ADHD consumer find the support and services they need. In addition, they provide personalized services through both email and phone requests. ADD Resources hosts 7 support groups for both parents and adults in the Puget Sound area, as well as two webinars each month. They also host a fall conference and one or two workshops for teachers, parents and/or adults each year. Membership with ADD Resources is strongly encouraged.

Review Date: August 30, 2012

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Brain Tumor Foundation for Children, Inc.

The Brain Tumor Foundation for Children provides emotional and informational support to families of children with brain tumors, educates the public and increases awareness of the disease, and raises funds to support research for a cure and for the improvement in the treatment and quality of life of the victims of pediatric brain tumor disease.

Review Date: January 07, 2009

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Children’s Brain Tumor Foundation

This national non-profit organization was founded in 1988 by a group of dedicated parents, physicians and friends to improve the treatment, quality of life and the long-term outlook for children with brain and spinal cord tumors through research, support, education, and advocacy to families and survivors. Over four million dollars have been given out for cutting edge research projects at leading medical institutions across the country. Support services include the Parent-to-Parent Network, telephone support groups, educational teleconferences and referrals to social services.

Review Date: February 09, 2009

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Children's PKU Network

Children's PKU Network is a nonprofit agency founded in 1991 by the parents of a child diagnosed with PKU (Phenylketonuria). The agency offers support through various programs to assist families with newly diagnosed infants with PKU and other metabolic disorders. A referral service serves as a medium for sharing information on obtaining needed services. A Maternal PKU Express Pack is available to women with PKU. PKU is a rare metabolic disorder that affects approximately 1 in every 15,000 births in the United States. Although not curable, PKU is treatable by adherence to a strict diet, devoid of fats and aspartame.

Review Date: February 20, 2009

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Cleft Palate Foundation

The Cleft Palate Foundation (CPF) is a nonprofit organization dedicated to optimizing the quality of life for individuals affected by facial birth defects. It is the public service arm of the American Cleft Palate-Craniofacial Association. Callers can request information about cleft palate/craniofacial treatment teams and parent-patient support groups in their local region. In addition, the CPF provides the following services: comprehensive information to educate patients, families, and professionals; telephone and online counseling and support service through the Cleftline 1-800-24-CLEFT (1-800-242-5338); research to learn about prevention and care; Cleftline Teddy Bears with repaired cleft lips; advocacy for family-centered team care; and, awards for a minimum of three $500 college scholarships each year to young adults affected by cleft and craniofacial birth defects.

Review Date: February 26, 2013

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CODA: Children of Deaf Adults

C.O.D.A. – Children of Deaf Adults, Inc., is a non-profit organization that focuses on hearing children of deaf adults. The organization began in 1983 and has grown to include people from many different countries and very different family and extended family situations. C.O.D.A. addresses bicultural identity through conferences, support groups, and resource development.

Review Date: August 28, 2008

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Co-Dependents Anonymous

Co-Dependents Anonymous (CoDA®) was established in 1986 as a self-help recovery program for individuals coping with co-dependency. Co-dependency is a compulsive, self-destructive behavior, characterized by an inability to maintain functional relationships, and may include a history of addiction. CoDA® is a non-professional organization, and is not allied with any sect, denomination, politics, organization or institution. Its group activities are patterned after twelve-step recovery programs. Group meetings have been established in 49 states and 10 countries.

Review Date: August 18, 2010

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Colon Cancer Alliance

The Colon Cancer Alliance (CCA) is the oldest and largest national patient advocacy organization dedicated to ending the suffering caused by colorectal cancer. In order to increase rates of screening and survivorship, the CCA provides patient support, public education, supports research and conducts advocacy work across America. As the Voice of Survivors, the CCA works as an advocate for colorectal cancer patients and their families. The CCA offers information and support from the first-hand experience of survivors and others whose lives have been touched by this disease. Today, the CCA provides information and services to hundreds of thousands each year. Our helpline receives an average of 700 calls monthly, and our support networks are essential to patients, family and caregivers. We have multiple programs designed to both assist those affected by the disease as well as raise awareness to improve screening rates. The growth and success of the organization is due in large part to caring volunteers who devote considerable time, skill and energy to achieving CCA's vision.

Review Date: December 15, 2008

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Compassionate Friends

The Compassionate Friends (TCF) is a national nonprofit, self-help support organization offering friendship, understanding, and hope to families grieving the death of a child of any age, from any cause. There is no religious affiliation and no individual membership fees or dues are charged. All bereaved family members are welcome. Founded in England in 1969, TCF was established in the United States in 1972, with 501(c)(3) not-for-profit incorporation in 1978, under which provision the organization’s more than 640 local chapters also operate. TCF operates as separate entities in at least 30 countries around the world. Regular meetings of local chapters provide a caring environment in which bereaved parents, siblings, and grandparents can work through their grief with the help of others who have “been there.” Monthly, more than 17,000 attend chapter meetings. Outreach is provided to more than 182,000 bereaved family members and professionals each month through chapter newsletters, websites, Facebook Pages, special programs including regional conferences, concurrent walks, phone calls, letters, e-mails, and personal visits. Educational information on grief following the death of a child and the work of TCF is provided to the community through publicity, speaking engagements, and the distribution of materials.

Review Date: March 20, 2013

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Debra of America, Inc.

The Dystrophic Epidermolysis Bullosa Research Association of America (DEBRA) was formed in 1979 as a self-help group for persons suffering from epidermolysis bullosa (EB), a group of inherited skin disorders characterized by the formation of blisters after mild trauma. Staff provide professional and emotional guidance, raise funds for research, and help administer public and professional education. DEBRA of America and its sister organizations in Australia, England, New Zealand, and Israel are dedicated to improving public and professional understanding and awareness of EB.

Review Date: August 25, 2008

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Depression and Bipolar Support Alliance

The Depression and Bipolar Support Alliance (DBSA) is a non-profit, patient-directed organization founded to provide personal support and direct services to patients with depression or manic depression and their families. DBSA offers a toll-free information and referral line, has more than 1,000 patient-run support groups throughout th U.S. and Canada, and reaches nearly five million people through educational materials and programs, exhibit materials, and media activities. An annual conference is held to provide for communication between local chapters, general members, and the DBSA.

Review Date: May 31, 2011

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Dougy Center, The National Center for Grieving Children and Families

The Dougy Center is a local support group where children, teens, and their families who are grieving a death can share experiences as they move through the healing process. Individuals and organizations seeking to assist children and teens in grief can receive support and training nationally and internationally through the Center's affiliate, the National Center for Grieving Children and Families.

Review Date: May 31, 2011

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Dystonia Medical Research Foundation

The Dystonia Medical Research Foundation (DMRF) is a tax exempt organization, incorporated in 1976, created to increase awareness and understanding of dystonia among doctors and researchers and to spark innovative exploratory research projects directed at finding the causes of dystonia and related disorders. These disorders are characterized by loss of voluntary control over body posture and movement. To date, the DMRF has supported over 400 dystonia specific research grants, totalling over $20 million. The DMRF supports workshops, doctor-patient education, and research grants. The Foundation has over 60 chapters and support groups located throughout the United States and Canada and can supply referrals for local treatment. The DMRF is supported by donations from individuals, corporations, and foundations. The Foundation deals with all forms of dystonia.

Review Date: August 26, 2008

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Fanconi Anemia Research Fund, Inc.

Fanconi Anemia Research Fund, Inc., is a nonprofit corporation established in 1989. It is committed to providing education and support services to families around the world affected by FA. The Fund sponsors a variety of programs and services to assist the FA patients and their families. The Fanconi Anemia Research Fund manages two online Support Groups, which allows adults with FA and families affected by FA to exchange questions and information with others affected by FA. The Fund provides education to those affected by FA. The Annual Family Meeting brings specialists and families together, providing parents and adults with FA with the latest information on health care guidelines, as well as giving children with FA opportunities for leisure activities in a supportive environment.

Review Date: June 09, 2011

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Foundation for PSP/CBD and Related Brain Diseases, Inc.

This nonprofit organization offers information on progressive supranuclear palsy (PSP) and corticobasal degeneration (CBD) and support to persons with CBD, their families, and their caregivers. Through its online service, the Foundation also offers physicians and other health care professionals information on treatment, research into PSP and research opportunities that are available.

Review Date: August 16, 2012

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Guardians of Hydrocephalus

The Guardians of Hydrocephalus Research Foundation (GHRF) is a non-profit group dedicated to research into the cause and treatment of hydrocephalus. The Foundation operates a laboratory in the Department of Neurology at New York University Medical Center, in which information from clinical and research facilities is integrated to provide for better diagnosis and treatment of hydrocephalus, a frequently-occurring congenital disorder that can also occur shortly after birth. Hydrocephalus accounts for a large proportion of adult patients with a diagnosis of dementia.

Review Date: November 21, 2008

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Klippel-Trenaunay Syndrome Support Group

The Klippel-Trenaunay Syndrome Support Group's mission is to provide support for K-T Syndrome patients and their families. Their objectives in accomplishing this mission are: to act as a support group for sharing experiences and information; to provide a clearinghouse for correspondence between members; and to maintain a list of current medical literature pertaining to K-T Syndrome and to make it available to members and professionals. There is no membership fee. The group is supported by donations.

Review Date: December 07, 2010

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Life Raft Group

The Life Raft Group (LRG) is a 501 (c)(3) non-profit organization. LRG has a simple focus: to cure a form of cancer – GIST (Gastrointestinal Stromal Tumor) – and to help those living with it until then. To do this, we focus on three key areas: research, patient support & education, and advocacy, which lay the foundation of our mission to ensure the survival of GIST patients through a comprehensive approach connecting individual patients’ needs, the worldwide community of GIST advocates and the global health and research environment.

Review Date: May 09, 2011

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Lung Cancer Alliance

Lung Cancer Alliance is the only national nonprofit organization advocating on behalf of lung cancer patients, survivors, families, and caregivers. Their mission is to lead the movement to reverse decades of stigma and neglect by empowering those with or at risk for the disease, elevating awareness and changing health policy. Programs include the Lung Cancer Hotline, a toll-free informational service for lung cancer patients and their caregivers; "Phone Buddies," a peer-to-peer support service; “LCA Survivors Community”, an online support community; “Lung Cancer Alliance Clinical Trials Matching Service”; "Lung Cancer Awareness Month," a national education and advocacy campaign; "Spirit and Breath," newsletter, and "Advocacy Alerts," to keep advocates informed.

Review Date: June 14, 2011

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Lupus Foundation of America

The Lupus Foundation of America is the nation’s leading nonprofit voluntary health organization dedicated to finding the causes and cure for lupus. The LFA seeks to improve the diagnosis and treatment of lupus, support individuals and families affected by the disease, increase awareness of lupus among health professionals and the public. The LFA operates programs of research, education and support through its nationwide network of chapters, branches and support groups.

Review Date: March 30, 2011

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Maple Syrup Urine Disease Family Support Group

The Maple Syrup Urine Disease (MSUD) Family Support Group provides opportunities for support and personal contact for those with MSUD and their families. MSUD, which derives its name from the distinct sweet smell of the urine, affects the way the body metabolizes certain components of protein. The purpose of the support group, which began in 1983, is to gather and distribute information on MSUD, strengthen the liaison between families and professionals, and encourage research and newborn screening for MSUD. The organization sponsors biennial symposia. The group develops resources to meet the goals of support and education.

Review Date: July 08, 2010

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Multiple Sclerosis Association of America

The Multiple Sclerosis Association of America (MSAA) is a national nonprofit organization dedicated to enriching the quality of life for everyone affected by multiple sclerosis. MSAA provides ongoing support and direct services to these individuals with MS and the people close to them. MSAA also serves to promote greater understanding of the needs and challenges of those who face physical obstacles. In addition to a variety of programs and services - such as consultations, equipment distribution, MRI diagnostic funding, and public awareness campaigns - MSAA also provides valuable information through its magazine and other literature.

Review Date: January 03, 2011

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National Association of Mothers' Centers

Since 1975 Mothers' Centers have been providing community-based discussion groups that provide a chance to meet, connect to, support and learn from other mothers. The National Association of Mothers' Centers (NAMC), a national non-profit, has vast experience working with mothers and families in identifying and addressing the issues that most affect their lives. Mothers' Centers are self sustaining, non-profit groups and help keep the program going through cooperative responsibility. The NAMC advocates in the areas of work/life and the economic impact of care giving.

Review Date: February 26, 2013

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National Coalition for Cancer Survivorship

Founded by and for cancer survivors, the National Coalition for Cancer Survivorship (NCCS) advocates for quality cancer care for all people touched by cancer and provides tools and resources that empower people to advocate for themselves. Patients empowered with information and tools can receive optimal care by making their needs known to their doctors and care teams. Provided at no cost to the survivor, NCCS offers publications and resources such as the award-winning Cancer Survival Toolbox®, a self-learning audio program created by leading cancer organizations to help people develop essentials skills to meet the challenges of their illness. NCCS strongly believes in evidence-based advocacy that reflects the needs of all cancer survivors to effect policy change at the national level. By advocating for patient-centered, coordinated care through treatment planning and care planning, NCCS is ensuring that the needs of cancer survivors remain at the center of healthcare policy.

Review Date: August 28, 2008

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National Hematologic Diseases Information Service - NHDIS
National Institute of Diabetes and Digestive and Kidney Diseases

The National Hematologic Diseases Information Service (NHDIS) is a service of the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK). The NIDDK is part of the National Institutes of Health of the U.S. Department of Health and Human Services. The NHDIS provides information about hematologic diseases to people with hematologic diseases and to their families, health care professionals, and the public. The NHDIS answers inquiries, develops and distributes publications, and works closely with professional and patient organizations and Government agencies to coordinate resources about hematologic diseases.

Review Date: April 11, 2011

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National Pain Foundation

The National Pain Foundation (NPF), a non-profit, 501(c)(3) organization, was established in 1998 to advance functional recovery of persons in pain through information, education and support. The goal of NPF is to empower patients by helping them become actively involved in the design of their treatment plan, exploring both traditional and complementary approaches to pain management. The National Pain Foundation provides an easy-to-use source of information and support for pain patients and their families. Through education, materials and programs, the NPF works to erase the stigma associated with pain and pain treatment. The NPF web site and other materials offer information about chronic pain conditions such as arthritis and complex regional pain syndrome (CRPS) or reflex sympathetic dystrophy (RSD).

Review Date: September 19, 2011

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Noonan Syndrome Support Group, Inc.

Noonan Syndrome Support Group, Inc. (NSSG) is committed to providing support, current information, and understanding to those affected by Noonan syndrome, a condition often associated with congenital heart disease and short stature. NSSG is intended for people whose lives are touched by Noonan Syndrome, and want to exchange experiences, support, networking, and information.

Review Date: May 25, 2011

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Obesity Action Coalition

Obesity Action Coalition is an IRS registered 501(c)3 National non-profit dedicated to giving a voice to those affected by obesity. The OAC mission is to elevate and empower those affected by obesity through education, advocacy and support.

Review Date: February 26, 2013

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Pulmonary Hypertension Association

The Pulmonary Hypertension Association (PHA) is a non-profit health organization, serving patients with pulmonary hypertension, their family members and the medical professionals who treat them. Its mission is to find ways to prevent and cure pulmonary hypertension, and to provide hope for the pulmonary hypertension community through support, education, and advocacy and awareness. PHA provides ongoing educational opportunities for patients and the medical community; the chance for patients to connect with others through support groups and online communities; print and online newsletters; and numerous other resources. PHA also funds cutting-edge research on pulmonary hypertension in collaboration with the National Heart, Lung, and Blood Institute, the American Thoracic Society and the American Heart Association. Pulmonary Hypertension is a simplified name for a complex health problem: high blood pressure in the lungs. It is a rare and currently incurable, but increasingly treatable condition that affects both genders and people of all ages and ethnic backgrounds.

Review Date: October 18, 2011

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Sexaholics Anonymous

Sexaholics Anonymous (SA) is a fellowship of men and women who share their experience, strength, and hope with each other so that they may solve their common problem. SA is not a sex or group therapy and offers no treatment -- it is a program of recovery for those who want to stop their sexually self-destructive thinking and behavior. SA's support group philosophy is taken directly from the Twelve Steps and Twelve Traditions of Alcoholics Anonymous.

Review Date: February 14, 2013

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Shwachman-Diamond Syndrome Foundation

The Shwachman-Diamond Syndrome Foundation (formerly Shwachman-Diamond Syndrome International) is a non-profit group that operates on national and international levels. The purpose of the organization is to support families dealing with this rare disease, to advocate research, disseminate medical information and raise public awareness.

Review Date: August 17, 2010

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Sjogren's Syndrome Foundation, Inc.

The Sjogren's Syndrome Foundation (SSF) is a nonprofit organization established to educate patients and their families about Sjogren's Syndrome, increase public and professional awareness, and encourage research into new treatments and a cure. The SSF sponsors nearly 100 support groups throughout the U.S. and Canada. These groups, run by volunteers, provide members with the opportunity to share advice and tips for living more comfortably with Sjogren's. SSF Patients seminars, offering educational opportunities with expert speakers, are offered throughout the year and are open to the public.

Review Date: August 11, 2010

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Support for People with Oral and Head and Neck Cancer, Inc.

Support for People with Oral and Head and Neck Cancer, Inc. is a national, non-profit organization which offers information, support and encouragement to oral and head and neck cancer patients. There are presently 100 chapters of SPOHNC nationwide. SPOHNC responds to mail, telephone and electronic inquiries. SPOHNC’s “National Survivors Volunteer Network” has been serving patients, caregivers and their families since 2004, bringing them the opportunity to share diagnosis and treatment experiences with “someone who has walked in their shoes.” The network consists of volunteers who have had oral and head and neck cancer. This unique matching service pairs volunteers who have gone through diagnosis, treatment, and recovery with patients or family members who are just beginning their journey, or now recovering from side effects of cancer or its treatment.

Review Date: July 14, 2010

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The Brain Aneurysm Foundation

The Brain Aneurysm Foundation is the nation’s only nonprofit organization solely dedicated to providing critical awareness, education, support and research funding to reduce the incidence of brain aneurysms. The Foundation’s mission is to provide support and educational materials to the medical community, the newly diagnosed, survivors, family members, friends and the general public regarding the facts, treatment options, and recovery process for brain aneurysms.

Review Date: November 15, 2011

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The United Mitochondrial Disease Foundation

UMDF’s mission is to promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and to provide support to affected individuals and families. Since 1996, the UMDF has provided more than $8 million in grants to support the research that may lead to a less invasive diagnosis and ultimately a cure. Members of the UMDF are able to network with other families and individuals to talk about mitochondrial disorders. UMDF members are able to find support on the local and regional level through various chapters, groups and ambassadors. The UMDF maintains a website to provide the latest news and information about issues relating to mitochondrial disease research and information. The UMDF also holds an annual international symposium that brings together the best physicians and researchers for patients and family members to gain valuable information.

Review Date: March 08, 2013

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TOPS Club, Inc. (Take Off Pounds Sensibly)

TOPS Club, Inc. (Take Off Pounds Sensibly) is a, nonprofit, weight-loss support and wellness education organization. Established in 1948 to champion weight-loss support and success, TOPS promotes successful, affordable weight management with a philosophy that combines healthy eating, regular exercise, wellness information, awards and recognition, and support from others at weekly chapter meetings. TOPS is comprised of men, women, and children age 7 and older, with about 170,000 members in nearly 10,000 chapters throughout the United States and Canada. Visitors are welcome to attend their first TOPS meeting free of charge.

Review Date: August 29, 2011

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Vestibular Disorders Association

The Vestibular Disorders Association (VEDA), formerly the Dizziness and Balance Disorders Association of America, was founded in 1983 as a nonprofit, membership organization that provides a support network for people coping with dizziness and balance disorders. VEDA acts as a resource for information and services on balance disorders, specifically vestibular disorders, and seeks to educate the public and health professionals. VEDA also supports activites that improve the quality of life for people affected by dizziness and balance disorders. Fees are charged for some publications.

Review Date: September 24, 2010

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Xeroderma Pigmentosum (XP) Family Support Group

The Xeroderma Pigmentosum (XP) Family Support group is dedicated to improving the quality of life of those affected with xeroderma pigmentosum through education and support services, researching effective treatments, and ultimately finding a cure.

Review Date: April 24, 2012

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XP Family Support Group

The XP Family Support Group is dedicated to improving the quality of life of those affected with xeroderma pigmentosum through education and support services, researching effective treatments, and ultimately finding a cure.

Review Date: April 14, 2011

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